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Subject:
From:
ken barber <[log in to unmask]>
Reply To:
St. John's University Cerebral Palsy List
Date:
Wed, 23 Nov 2005 10:34:45 -0800
Content-Type:
text/plain
Parts/Attachments:
text/plain (236 lines)
i had a little cottage bout a block off the beach in
maui. it was one of the less popular beaches. if you
like to be in the more popular areas lahainna would be
good. i dont know if i spelled that right.
    no matter where you stay get the limits on the
credit card up. it is paradise, but, paradise is not
cheap.
   have fun, mag. like i said i'd like to go back.
  my bud in hilo just sent me a pair of medals
commerating the honolulu coin club. if i could afford
it, such a nice place to retire.

  i have no intentions of going coach, but was told
that business class and first were not to much
different on some airlines, but really different on
some. i think i'd be doing quanta, but, not sure. as
many trips as i have been able to do online prep for,
i think an agent is going to be a must when i do this
one. it is going to be a huge trip.  it is probably a
few years off if i wait for enough FF miles to go
first class.

--- Magenta Raine <[log in to unmask]> wrote:

> in 1986 I spent a week on Oahu, I think, on a beach
> called waikiki.
> wonderful.
> I've always heard Maui was extra magical.  I expect
> I will try to take
> several day trips to other islands. I might even try
> snorkeling if they
> have a mask that i won't have to put my mouth
> around.  Hmm, perhaps I will
> run into an old bf who was a diving instructor. that
> would be a trip.
>
> Ken, I frequently get upgraded to first class
> because I can't walk all the
> way back to coach, and so, often if they  have
> available seats we get free
> upgrades and let me tell you: You don't want to be
> in anything less for a
> long trip like to down-under!  your poor neck would
> be a mess! I hope Judy
> wins a lottery!  anyway, talk to a travel agent to
> get those good seats
> because I don't think they don't sell them over the
> net.
>
> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
> [log in to unmask]
>
> "What is real but compassion, as we move from birth
> to death?"
> ~~Greg Brown~~
>
>
> > [Original Message]
> > From: ken barber <[log in to unmask]>
> > To: <[log in to unmask]>
> > Date: 11/22/2005 8:39:13 PM
> > Subject: Re: was: My water-retention problem now:
> traveling plans.
> >
> >  i actually liked the big island more than maui or
> >  ouhu, but liked ouhu better than maui. although
> maui
> >  has it's own character to offer. you will like
> maui.
> >  how long you going to be there? if you can visit
> >  more than one island i suggest it. i'd like to
> visit
> > all
> >  of them.
> >    i think your dad is great to send you.
> >
> >  since we are talking travel, i have enough
> frequent
> >  flyer miles in one accoubt for judy and i to go
> >  business class to austrailia and new zealand. in
> a
> >  few years we'll have first class mileage. i do
> not
> > know how much difference there is between first
> class
> > and business class as far as perks and confort for
> > international flying. don't know what is best way
> to
> > approach seeing the most of both countries. also
> could
> > have another stop on the way back. i would want
> this
> > to be about 4-6 weeks trip. will be only trip of
> this
> > magnatude that we ever take unless judy wins a
> lottery
> > or something.
> >
> >
> >
> > > >guess what!   My dad's sending me & a helper to
> > > Maui
> > > > for my big 50th
> > > > birthday! I'm really jazzed!
> > > >
> > > > Mag
> > > >
> > > > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
> > > > [log in to unmask]
> > > >
> > > > "What is real but compassion, as we move from
> > > birth
> > > > to death?"
> > > > ~~Greg Brown~~
> > > >
> > > >
> > > > > [Original Message]
> > > > > From: ken barber <[log in to unmask]>
> > > > > To: <[log in to unmask]>
> > > > > Date: 11/22/2005 1:53:44 PM
> > > > > Subject: Re: My water-retention problem
> > > > >
> > > > > i see a dystonia specialist and this is
> > > something
> > > > that
> > > > > people with dystonia can do is to foll a
> body
> > > part
> > > > to
> > > > > relax. i do this on a regular basis that is
> to
> > > > fool
> > > > > one part to relax at least temporarily. you
> > > can't
> > > > stay
> > > > > tense in one place to relax another one all
> the
> > > > time,
> > > > > but, i do give the worse place a break for a
> > > short
> > > > > time.
> > > > >
> > > > > --- Jonathan Rand <[log in to unmask]>
> wrote:
> > > > >
> > > > > > My feet r very tender, I think because of
> > > > abnormal
> > > > > > stresses put on them.  It
> > > > > > used 2 be much worse.  When symptoms of
> > > chemical
> > > > > > sensitivity first started
> > > > > > creaping up on me, I didn’t no what was
> > > > happening.
> > > > > > My movements became more
> > > > > > normal at first.  Then I became very
> sleepy
> > > all
> > > > the
> > > > > > time.  Sometimes my
> > > > > > movements became A LOT worse!  Neck spasms
> > > were
> > > > > > choaking off blood 2 my
> > > > > > brain, (or something like that).  Anyway,
> my
> > > > feet
> > > > > > were getting soar from
> > > > > > walking “wrong” I guess.  4 a few years, I
> > > wore
> > > > > > extra large shoes, & I wore
> > > > > > them on the wrong foot, (left on right,
> etc.),
> > > > to
> > > > > > stop my feet from rubbing
> > > > > > on the shoes.  Getting my toenails cut was
> > > like
> > > > open
> > > > > > heart surgery!
> > > > > >
> > > > > > But after I learned how 2 control the
> chemical
> > > > > > sensitivity, my mobility
> > > > > > problems seemed 2 “stabolize,” & walking
> > > became
> > > > much
> > > > > > easier.  I still don’t
> > > > > > / can’t walk without shoes because my toes
> > > curl
> > > > up
> > > > > > under my feet, & they wud
> > > > > > drag along the ground, (and that HURTS),
> but
> > > > since
> > > > > > my doctors weren’t really
> > > > > > helping, I felt I was forced 2 try stuff
> on my
> > > > own,
> > > > > > & maybe I was somewhat
> > > > > > successful.
> > > > > >
> > > > > > I still hate getting my toenails cut but
> it’s
> > > a
> > > > > > thousand times easier now…
> > > > > >
> > > > > > I don’t know if other people can do this…
> > > Maybe
> > > > I’m
> > > > > > weird.  But at 1 point
> > > > > > I found that I was able 2 relax my feet
> wile
> > > > > > walking, if I tensed up
> > > > > > “something else.”  Like my legs, (or
> another
> > > > part of
> > > > > > my body).  Then my toes
> > > > > > didn’t curl up, & my feet didn’t turn in
> as
> > > > much.
> > > > > >
> > > > > > But I have ATHETOSIS as well as
> spasticity.
> > > In
> > > > som
> > > > > > cases I get to CHOOSE
> > > > > > between the 2.
>
=== message truncated ===





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