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My husband has refractory celiac disease. Because of this we have had  
to spend more time in several hospitals . We have had to  engage with  
the various  components of the health care system.

Many of our experiences have been less than satisfactory . When I  
tried to find some way of dealing with issues like incomplete and  
erroneous discharge  notes, problems getting IV nurses for home

care ( because my town was not covered by the services due to the  
catchment area we live in.)    I called the Department of Public . It  
seemed that none of their many departments covered the areas I

wanted to address. After many calls someone suggested I call Health  
Care  for All. This is an advocacy group working to provide a forum  
for those impacted by health quality issues  so they can have a

voice  in the health care system. . They  have an Advisory Board with  
members who have excellent knowledge and experience and a Consume  
Health Quality Council made up of members who have

  been personally impacted.  I contacted them and was very impressed.


They have been working the health care quality Bill which is   
Massachusetts  Senate 1277, " An Act Promoting HealthCare  
Transparency and Consumer and Provider Partnerships."

I would encourage Massachusetts voters to help support this bill.


In Massachusetts, you can find more about this organization at http:// 
www.hcfama.org

You can call them at 617-725-7279. You may want to speak to James  
Madden, Consumer Health Quality Organizer he is at 617-2752940


I found by doing a search that  ---California , Maryland, Oregon and  
Texas have listings under Health Care for All. Thus this may be a  
national movement.

I hope that this information is useful.

Irma De Bruyn

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