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My 11 year old daughter was diagnosed with Celiac nearly 2 years  
ago.  The gluten free diet has really helped her to feel better but  
she has the episodes I do not understand and I am hoping that someone  
out there will maybe have some thoughts about it.

It usually begins by her saying "I don't feel right" - she can't put  
her finger on exactly what specifically she is feeling...she just  
knows it's "not right" - then within a day or so, she feels "tingly"  
- usually her arms, legs, hands and lips - it doesn't hurt, just  
tingles.  Along with this, she feels nauseous, tired, cold and  
achy...this is such a huge variation from the norm for her - she  
wear's tank tops and shorts all winter long, she is as naturally  
happy and upbeat a person as I've ever met and her "neutral" mode is  
extremely high energy - so when she suddenly feels so miserable,  
tired, lethargic and cold it just is such a marked change from usual  
for her.  These episodes last from 1 -10 days and there have been  
times where she has had a few in the course of several months or,  
like right now, it has probably been six months since she last had one.

We have been to the GI doc, as well as a rheumatologist and her  
primary.  Blood work is normal.  Neurological exam is normal. Could  
this just be the way she responds to an accidental gluten exposure?   
Has anyone else had or seen symptoms like this from gluten (or  
anything else)?  Any thoughts would be greatly appreciated!  I really  
am tired of feeling so helpless and not even understanding what it is  
I am unable to help!

Thanks so much in advance!

Kim in PA

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