<<Disclaimer: Verify this information before applying it to your situation.>> My 11 year old daughter was diagnosed with Celiac nearly 2 years ago. The gluten free diet has really helped her to feel better but she has the episodes I do not understand and I am hoping that someone out there will maybe have some thoughts about it. It usually begins by her saying "I don't feel right" - she can't put her finger on exactly what specifically she is feeling...she just knows it's "not right" - then within a day or so, she feels "tingly" - usually her arms, legs, hands and lips - it doesn't hurt, just tingles. Along with this, she feels nauseous, tired, cold and achy...this is such a huge variation from the norm for her - she wear's tank tops and shorts all winter long, she is as naturally happy and upbeat a person as I've ever met and her "neutral" mode is extremely high energy - so when she suddenly feels so miserable, tired, lethargic and cold it just is such a marked change from usual for her. These episodes last from 1 -10 days and there have been times where she has had a few in the course of several months or, like right now, it has probably been six months since she last had one. We have been to the GI doc, as well as a rheumatologist and her primary. Blood work is normal. Neurological exam is normal. Could this just be the way she responds to an accidental gluten exposure? Has anyone else had or seen symptoms like this from gluten (or anything else)? Any thoughts would be greatly appreciated! I really am tired of feeling so helpless and not even understanding what it is I am unable to help! Thanks so much in advance! Kim in PA *Support summarization of posts, reply to the SENDER not the Celiac List* ******* To unsubscribe, email: mailto:[log in to unmask] *******