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Date: | Mon, 23 Jun 1997 10:24:22 -0400 |
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<<Disclaimer: Verify this information before applying it to your situation.>>
Don Wiss sent me the following statistical information about symptoms
reported by biopsy-proven celiacs before diagnosis.
Below that, you will find the list of diagnoses made before the celiac
diagnosis was made. There seems to be enough interest in this question to
justify posting Wiss' reply to me, though some may have seen it already and
this does violate the dicta against forwarding responses directly to the
list. I hope nobody minds.
Mary Brown New York
>Here's a survey that mentions headaches. It says 21.3%. Don.
>
>The following is part of a Canadian Celiac Association survey where 1294
>questionnaires (out of 1937 sent) were returned (82% biopsy proven). It
>lists various symptoms and misdiagnoses for celiac disease.
>
>(1) When asked how many doctors they had consulted about their problem, 25%
>of 960 biopsy-proven respondents said one doctor, 29% two doctors, 17%
>three doctors, 12% four doctors, 6% five doctors, 6% six to 10 doctors, and
>3% more than 10 doctors.
>
>(2) Duration of symptoms experienced by biopsy-proven respondents before
>diagnosis of celiac disease:
>
> Std Range* Respondent
> Median Mean Dev Maximum No. of Pct. of
>Symptom (years) (years) (years) (years) Respondents 960 Total
>------- ------- ------- ------- ------- ----------- ----------
>Diarrhea 1.9 6.6 11.7 75 774 80.6%
>Abdominal pain 2.0 8.0 12.4 65 583 60.7
>Gas or belching 2.5 8.4 13.0 74 629 65.5
>Fatigue or lethargy 2.0 7.9 12.6 79 688 71.7
>Bloating 2.0 7.9 12.4 79 770 80.2
>Nausea or vomiting 1.0 5.8 10.9 65 334 34.8
>Lack of appetite 1.0 6.2 12.7 70 330 34.4
>Skin rash (DH) 4.0 10.3 13.0 57 155 16.1
>Headache or migraine 10.0 13.9 13.9 62 204 21.3
>
>* minimum range is one month for all symptoms
>
>(3) Diagnoses of diseases made before celiac disease was diagnosed:
>
> Respondents (%)
> Biopsy Proven Not Biopsy Proven
>Diagnosis (N=686) (N=145)
>--------- ------------- -----------------
>Anemia 47% 30%
>Stress 45 39
>Nervous condition 41 39
>Irritable bowel 34 43
>Stomach ulcer 23 14
>Food allergy 19 32
>Colitis 13 23
>Menstrual problems 13 17
>Edema 9 8
>Gallstones 9 10
>Diverticulitis 6 9
>Dermatitis Herpetiformis 4 5
>Other 36 39
>
>More complete results were published in their Spring 1993 newsletter.
>Reprints available from:
>
> Canadian Celiac Association
> 6519B Mississauga Road
> Mississauga, Ontario L5N 1A6
>
> (905) 567-7195 (800-363-7296 in Canada)
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