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Subject:
From:
Cindy Mallory <[log in to unmask]>
Reply To:
Cerebral Palsy List <[log in to unmask]>
Date:
Thu, 27 May 2010 17:15:21 EDT
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If anyone can direct this to CPPARENT liserv it may be helpful info. I got  
bumped off because I went away and too much mail built up in my box so I  
was automatically taken off and I don't even know how to rejoin at this 
point.  But I wanted to pass along some info on new technology that my son just 
tried  which is being studied at the NIH (National Institute of Health in 
Maryland) on  CP children with success. If your child is ambulatory there is an 
assistive  device that is placed around knee that gives electrical stim to 
place foot  correctly. Some insurances are paying for this in their view it 
is cheaper than  surgery.My son just turned 19 so we would probably have to 
pay out of pocket,  but my son is happy with his awkward gait so I'm not 
sure we will pursue. I  thought he planted foot better on his 15 minute trial 
which over time would  probably improve his gait. It's very new technology 
and if you wish to consider,  the only contact person I know is Gregg Beideman 
at Innovative Neurotronics at  (888) 884-6462 ext 1936. I met him at the 
Polyclinic in Harrisburg where he was  trying it on an MS patient.
Cindy Mallory

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