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Subject:
From:
"Vicki E. Jones" <[log in to unmask]>
Reply To:
Vicki E. Jones
Date:
Mon, 8 Aug 2005 07:19:40 -0500
Content-Type:
text/plain
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<<Disclaimer: Verify this information before applying it to your situation.>>

Dear Listmates -
I have noticed some posts, over time, that assume we
all get diarrhea as a gluten reaction.

40% of Celiacs don't get diarrhea as a symptom. One
doctor I went to said he read somewhere it is more like
50%.

When I was diagnosed 6 years ago, I had first spent 4
months dealing with a doctor at Loyola who completely
missed the diagnosis, because he was looking for diarrhea
and I didn't have it.

When I finally went to a local gastroenterologist on my own,
who was more familiar with Celiac Disease. he knew that I
could have Celiac Disease without diarrhea, and he did the
endoscopy and sent the tissue samples to a pathologist familiar
with Celiac Disease, and I was finally diagnosed correctly.

I had been mis-diagnosed with Irritable Bowel Syndrome for
ten years before I was diagnosed correctly, also.
Vicki

*Support summarization of posts, reply to the SENDER not the Celiac List*

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