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Mon, 23 Aug 2004 20:21:51 EDT
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<<Disclaimer: Verify this information before applying it to your situation.>>

This is my first time posting, so thanks for your consideration. :)

I experience an exceptionally annoying ataxia reaction whenever I  ingest
wheat gluten.  I read someplace that my genotype (below) is  directly linked to
ataxia...  I am wondering if a double dose of the gene  is possibly the cause
of what is happening.

If you would kindly humor me?  I would appreciate hearing  from folks who
have ataxia as part of their reaction.

1.  If you know it, what genotype do you have?
2.  How quick is your reaction to gluten ingestion, in  minutes/hours/days?
3.  What ataxia reaction(s) do you have?
4.  How severe would you consider your ataxia reaction to be, on a  scale of
1-10?

1.  My genotype is:  HLA-DQB1*0201, 0201
2.  I have a typical reaction time of 45 minutes flat, at which point  if I'm
not in a dead run towards a restroom, I can pretty much write off my
clothing.
3.  Ataxia reactions I experience:
     Inability to form words (talking and go  blank)

Inability to communicate coherently
     Inability to walk straight

     Vertigo / drunken feeling (room spins even if I'm  laying down)
     Get so sleepy I cannot remain on my feet
4.  Severity of 9; can barely function.

I will summarize in a day or two, once I have a few responses  collected.  I
consider this to be a somewhat "less-common" reaction, so  I'll be patient.

Kind thanks. :)

-Donna

*Support summarization of posts, reply to the SENDER not the CELIAC List*

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