<<Disclaimer: Verify this information before applying it to your situation.>>

Many thanks for the wonderful, very helpful responses!  Each of the
following paragraphs is a comment - some slightly edited - from one
Listmate.

 

My Gastroenterologist told me to take Ultimate Flora Probiotic--on 2
weeks/off 2 weeks--it says gluten-free on all their boxes--I take the "over
60" ones because I am.

 

Diagnosed Celiac:  I do not take probiotics.  I took them for a while and
found they didn't seem to do much for me

 

I take Now brand Probiotic - 10 25 Billion I take 1 capsule a day.  I used
to take Pearls IC but had problems with the dairy and soy.

 

I don't take anything special when glutened

My son, age 13, has been diagnosed with RCD, type 1.  Our GI doctor said
there is no evidence to support that probiotics help with celiac disease.
He has never been told to use probiotics in the seven years since being
diagnosed

 

I am medically diagnosed and I use Align.  I have IBS and my GI recommended
it.  It helps the IBS.  I don't take anything when I am glutened.  I vomit
and have diarrhea  and can't hold anything down for 12 hours or so.  

 

Self-diagnosed, medically confirmed:  Regularly: ?  R-Garden's Inner flora 1
pill 2X daily and R-Garden's  L. Salivarius  1X daily.  When glutened:
R-Garden Inner flora 2 pills 2X daily

 

I use Align generic from Walmart. GI gave me Align. Generic is very similar.
States gf on box.

 

Biopsy diagnosed in 1997.  Up until 3 year ago, I never took a probiotic -
none of the doctors I saw ever mentioned it.  But 3 years ago . . . was
diagnosed with an additional auto immune disease called collagenous colitis.
Told me it is not unusual for someone with celiac to get this colitis after
a bad gluten ingestion.    Said taking an Align probiotic every day was a
very good idea.  I have taken Align every day since.  Have no idea what good
it does, but am not willing to stop it to see what difference it might make.
I get it at Costco usually, cause their price is better.  

 

Diagnosed by blood test and biopsy:  I usually use culturelle  with 10
billion cultures.  2 capsules daily (20 billion cultures) normally.  If I
have to take an antibiotic, I need to use about 6 capsules daily.   My
gastro. MD recommended at least 20 billion cultures of acidophilus daily.   

I use Dr Ohhira's Original Formula twice a day. I've been taking it for over
a year. I'm biopsy diagnosed. 

 

GT's enlightened organic raw kombucha.  No gluten in the list of
ingredients.  Also labeled gluten free.  I get it at a Whole Foods store.

 

I don't use any dry/unrefrigerated probiotic supplements. If I take any,
it's in a yogurt (Activia) or a liquid refrigerated brand (Kefir).

 

Medically diagnosed.  Rite Aid Brand  300mg once daily (3 strains) regularly
and when glutened.

 

I take Keybiotics and have found it excellent.

 

My own comment:  It seems that, since we do not know which strains we are
actually lacking,  the most important features are the number of different
strains included - as opposed to the sheer quantity of cells.  And, maybe
more important,  the ability of the living cultures to survive the gastric
acid and digestion so that they are still viable when they reach the
intestine where they are needed.  I am looking at Jarrow from Super
Supplements, which is shelf-stable with 8 strains, provided in a special
capsule that does not disintegrate until it reaches the small intestine.
Any comments?  I will summarize any addition comments that I receive.

 

Thanks again for all your good advice!

 


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