Annie,
i am not understanding why you had to retire just because your legs aren't working anymore?
mag
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
http://www.zazzle.com/TamarMag*
Tamar Mag Raine
[log in to unmask]
www.cafepress.com/tamarmag
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
----- Original Message ----
From: Kendall D. Corbett <[log in to unmask]>
To: [log in to unmask]
Sent: Monday, July 21, 2008 11:00:13 AM
Subject: Fwd: [C-PALSY] Hi...I'm Annie
This didn't go to the list when I hit reply, so here it is:
---------- Forwarded message ----------
From: Kendall D. Corbett <[log in to unmask]>
Date: Mon, Jul 21, 2008 at 11:58 AM
Subject: Re: [C-PALSY] Hi...I'm Annie
To: [log in to unmask]
Annie,
Welcome to the list! I'm another aging CP'er, as is my wife, although we're
in our late 40's. We're already dealing with aging issues, so have started
doing research on it. We both work for a University Center of Excellence on
Disabilities (UCED - pronuonced "You SaId") in Wyoming - The Wyoming
INstitute for Disabilities (WIND)
www.wind.uwyo.edu
There is a UCED in Arkansas that may have info for you, as well, that has a
specific project on elders with developmental disabilities:
Website: http://www.uams.edu/partners
and contact info for the elders with disabilities coordinator:
Elders with developmental disabilities Brenda Reynolds,
BA<http://aucd.org/directory/detailbio.cfm?program=UCEDD&staffid=3106>
501-922-1880 [log in to unmask]
Many of the UCEDD's use the developmental disabilities terminology, because
of the way the funding is derived, but if that raises red flags, don't
worry. Particularly in rural states (Arkansas and Wyoming) we go well
beyond the developmental disabilities field. Under the federal definition,
many people with CP (even without cognitive disabilities) are thought of as
developmentally disabled.
The National Institute on Disability and Rehabilitation Research (NIDRR)
provides funding for Rehbilitation Engineering Research Centers (RERC's). I
think there is a RERC on CP, but it focuses on pediatric issues. We should
all write our senators and congress members and NIDRR and encourage funding
for a RERC on adult and aging with disability issues, particularly CP.
Here's general info on RERC's:
http://www.ed.gov/legislation/FedRegister/proprule/2003-1/011003c.html
And a listing of RERC's that have been funded although I'm not sure if the
database is current:
http://www.abledata.com/abledata.cfm?pageid=113573&top=31670&ksectionid=19326
Since these are largely engineering projects, they may not hit every one of
our needs. Wayne State University in Detroit does a fair amount of aging
with disabilities research also through their Physical medicine department,
so it might be a good place to start:
http://www.iog.wayne.edu/disability.php
On Sat, Jul 19, 2008 at 9:57 PM, Annette Koonce <[log in to unmask]>
wrote:
> Hi.....my name is Annie. I'm 62 year old woman in Arkansas who was born in
> Cape Town South Africa. My parents brought me to the States when I was three
> for treatment of my CP. I am a psychotherapist who was forced to retire in
> 1996 because I totally lost the use of my legs. I am now completely
> dependent on my daughter. (The state pays her to care for me). I am hoping
> to hear from other adults because so little is known about those of us who
> have CP in later life.
>
> I read the 1993 article from the state of New York which was cited in a
> previous email. I must say I wasn't impressed by it.... surely there is some
> other information somewhere which is more current! Can anyone out there
> help?
>
> Thanks so much. I can't wait to get to know y'all on the list.
>
>
>
>
>
> -----------------------
>
> To change your mail settings or leave the C-PALSY list, go here:
>
> http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy
>
--
Kendall
An unreasonable man (but my wife says that's redundant!)
The reasonable man adapts himself to the world; the unreasonable one
persists in trying to adapt the world to himself. Therefore, all progress
depends on the unreasonable man.
-George Bernard Shaw 1856-1950
--
Kendall
An unreasonable man (but my wife says that's redundant!)
The reasonable man adapts himself to the world; the unreasonable one
persists in trying to adapt the world to himself. Therefore, all progress
depends on the unreasonable man.
-George Bernard Shaw 1856-1950
-----------------------
To change your mail settings or leave the C-PALSY list, go here:
http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy
-----------------------
To change your mail settings or leave the C-PALSY list, go here:
http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy
|
