There is a lot of politics with diagnosis a child also.  Cerebral palsy at
least in the state of Florida will open doors to Medwaiver programs that
other diagnosis won't.  We also have problems with children diagnosed in the
autism spectrum disorders.  Autism will get you money, Asperger's won't.
Someday I'll write a great paper about this.

Beth T. the OT

-----Original Message-----
From: St. John's University Cerebral Palsy List
[mailto:[log in to unmask]]On Behalf Of Salkin Kathleen
Sent: Saturday, September 28, 2002 8:43 AM
To: [log in to unmask]
Subject: Re: Fibromyalgia


Well, to me if I'd been labelled a  CP all my life and suddenly my neuro
told me I had dystonia, I'd be rather confused, I'm sure.  I did ask my
neuro about it a while back, and he told me it's an area of change in the
specialty.  Paradigms are being shifted and the consequences are trickling
down (his words, not mine).  However he did say, in the end it's all the
same, just that  it's a matter of labelling, in his opinion.

Another disabled person (post-polio syndrome) and I were talking about this
re-labelling shift not too long ago, and it's his opinion that maybe parents
are wanting to get away from the CP label and latch onto something else that
seems less negative to them.  Not sure I agree with this, as I don't see
anything negative about CP.  But I'm a CP, and not an AB parent, and anyway
he sees things like this as more 'us vs. them' than I do.

Kat

-> and so the etiology, etc., is still being researched and the parameters
will
> likely change over time. I've known people who develop dystonia secondary
to
> the affects of accidental injury (such as injury to the neck or spine),
and
> I've also heard some forms of CP rediagnosed as dystonia.  Very confusing
> right now.
>
> Kat