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Reply To: | St. John's University Cerebral Palsy List |
Date: | Fri, 24 Mar 2000 15:13:28 EST |
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In a message dated 3/24/00 8:06:03 PM, [log in to unmask] writes:
<< have a disability, not CP more of a progressive MD. It's called
Friedreich's Ataxia, some of you may not have heard of it before because it
is so rare. I was diagnosed with it at 15, hit the wheelchair at 20 or 21
and I am 30 now. My speech is slured, I am about deaf, my ankles deformed, I
got no reflexes...look I could go on forever. I just want to say that you
can hate your disabilty and still live life, I do. At the same time, my
disability and deciding to finish the hand I was delt with makes me a strong
person. Anyone deciding to master a...hmmm...[needing a good word(sorry I
hate this word)], crippeling disability is a closer step to happiness.
>>
Russ,
I teach rehab. counseling so I know about Frederich Ataxia, it's very
similar to CP but has a later onset. The word you are serching for is
"coping".
Welcome to the list.
Bobby
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