Greta,

In my case, the initial injection was 65 units, and was increased to 100
units this time not because of a "tolerance" to the drug, but we agreed to
approach things cautiously the first time so my head wouldn't become
"floppy."  I'll let you know in May if we go up again.  I figure we'll start
"training" the other neurologist in the practice to do botox injections
then.  I've been a "teaching case" so many times it'd be scary, if my dad
hadn't been involved in medical education over half of his career.

Not being a PT, and not wanting to wait until next week when I see my PT
again, what does *GMFCS* stand for?  Is it an extension of the *G*lascow *C*oma
*S*cale?  I have a theory as to what the *MF* could stand for, but it
doesn't seem very professional.

OK, I did the research. *GMFCS*=*G*ross *M*otor *F*unction *C*lassification
*S*ystem.  Is this more often referred to in Canada, as neither Janet or I
had heard of it, and we've been involved in CP treatment (on the patient
side) in the US for over 40 years.


On 2/21/08, greta von der luft <[log in to unmask]> wrote:
>
> Looking at the case studies that are posted on the AACPDM site, it seems
> as
> if the children who were getting the systemic problems or the ones with
> the
> side effects of difficulty with swallowing and breathing, were children
> who
> were GMFCS level V. Children who are GMFCS level V are children who are
> very
> much physically impaired and they usually cannot voluntarily move/control
> their head or extremities. I am not a numbers person, but the dosage did
> not
> seem that high in at least one of the reported cases that are posted
> there.
>
> Either way being a peds PT this new information seems a little scary in
> that
> I want to investigate the issue in greater depth.... Be cautious..
>
> Just wondering, in children generally the dosage of Botox needs to
> increase
> with each round of injections so that the efficacy of the drug is still
> present. Does this also need to occur in adults?
>
> Take care,
>
> Greta
>
>
> --
>
>
> Kendall
>
> An unreasonable man (but my wife says that's redundant!)
>
> The reasonable man adapts himself to the world; the unreasonable one
> persists in trying to adapt the world to himself. Therefore, all progress
> depends on the unreasonable man.
>
> -George Bernard Shaw 1856-1950

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