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Subject:
From:
"Kendall D. Corbett" <[log in to unmask]>
Reply To:
Cerebral Palsy List <[log in to unmask]>
Date:
Mon, 9 Apr 2007 17:04:22 -0600
Content-Type:
text/plain
Parts/Attachments:
text/plain (262 lines)
Ken,

I'd stay as far away from baclofen as I could if I reacted to it like that!

With how you describe your tendonitis, it sounds a lot like Janet's.
Did anything, short of retirement, help?  If it means she should retire,
I'd better start looking for a job that pays more!


On 4/9/07, ken barber <[log in to unmask]> wrote:
>
> acutally my doc says i strained my tendons over and
> over and over 8-16 hours a day overcoming the dystonic
> spastisity in my arms and uper trunk just to do my job
> and my tendons just became permanant. you know as
> young people we were told you just overcome it. well i
> hurt myself overcoming it. especially during those
> times i was working with jewelery sized tools and the
> tiny screws taking apart computers and rebuilding the
> guts.
>
> my side effect was a dizzyiness, heart pounding,
> almost like a panic attack. i woke judy one night
> thinking i might be about to have some kind of heart
> failure. looked in the physicians desk  guied and all
> that was listed as possible side effects. so i have
> not tried it in any form again.
>
>
>
> --- "Kendall D. Corbett" <[log in to unmask]>
> wrote:
>
> > Ken,
> >
> > Janet got a pump about a year ago, and it's worked
> > fairly well for her.  She
> > was getting over-medicated on oral baclofen, but the
> > pump doses work
> > relatively well.  If the oral was causing nausea or
> > other symptoms for
> > you, ITB might not be the way to go.
> >
> > She's also got tendonitis symptoms that sound quite
> > a bit like what you've
> > described in the past.  She hoped the pump would
> > help some with that, by
> > reducing the spasticity in her arms, but it hasn't.
> > Have you found anything
> > that's helped with your tendonitis?
> >
> >
> > On 4/8/07, ken barber <[log in to unmask]> wrote:
> > >
> > > mag it is great that the baclofen pump worked so
> > well
> > > for you. i wish i did not get side effects with
> > > baclofen.
> > >
> > > --- Tamar Raine <[log in to unmask]> wrote:
> > >
> > > > Dear Friends,
> > > > I have good news! Many of you know that due to
> > > > severe pain from severe tightness in my legs,
> > due to
> > > > several car accidents in the 1990s, I have not
> > been
> > > > able to walk. Last year I was in even worse
> > shaape
> > > > as I hurt my hip, and it was so tight it hurt to
> > get
> > > > in the car because the seat in the car was the
> > wrong
> > > > angle. So, I was in a lot of pain, and
> > > > ever-increasing pain medication did little to
> > help.
> > > > I tried Feldenkrais, Massage, Acupuncture, hot
> > tubs,
> > > > PT, nothing worked. Xrays finally showed that my
> > hip
> > > > was so tight that it was pulling everything out
> > of
> > > > alignment. I was seriously depressed. Then I
> > > > remembered the spasticty clinic in Berkeley. I
> > was
> > > > finally able to get in to be evaluated by the
> > PT's,
> > > > they couldn't do anything with me because
> > everything
> > > > caused me so much pain. They recomended I try
> > the
> > > > ITB pump, aka the Baclofen pump. It has an 87
> > > > percent positive response in folks with CP, 95
> > > > percent positive response in people with SCI.
> > Before
> > > > they open you up to put in the
> > > >  pump, they test it, by injecting Baclofen into
> > the
> > > > spine. It worked very well for me, so in
> > December
> > > > 2006, I had the surgery. And now, three months
> > > > later, I am walking with a walker in PT!  After
> > I
> > > > get more practice walking on different surfaces,
> > > > they will give me a walker to take home. On
> > > > thursday, I walked about 30 feet...
> > > >
> > > > So, that is one thing, another thing is I have
> > fixed
> > > > up my website and have added many new paintings,
> > so,
> > > > go have a look and let me know what y'all think.
> > Of
> > > > course, I'd like you to purchase something if
> > you
> > > > see something you like. My prices are fair,
> > remember
> > > > that most of the price goes to cafepress who
> > provide
> > > > the items, print them, ship them, so I usually
> > earn
> > > > just a couple dollars on most, though not all
> > items.
> > > > Each design comes on many different items in a
> > range
> > > > of prices. if you have trouble seeing things,
> > press
> > > > Control and the Plus symbol on your numeric
> > keypad.
> > > > this will enlarge the page.  New items I'd like
> > to
> > > > point out are postage stamps. Yes, these are
> > real
> > > > U.S. postage stamps with two of my designs on
> > them.
> > > > Also of note, is my award-winning poem; The
> > Cerebral
> > > > Palsy Lady.  Also Breast Cancer Awareness
> > > > tee-shirts, and anti-RFID real i.d. act tee
> > shirts.
> > > > If I sell 200 breast cancer tees, I'll donate
> > 100.00
> > > > to Susan Koman foundation. So, tell all your
> > friends
> > > > to
> > > >  visit my website!
> > > > http://www.cafepress.com/tamarmag
> > > >
> > > > Love,
> > > > Tamar
> > > >
> > > > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
> > > > Tamar Mag Raine
> > > > [log in to unmask]
> > > > www.cafepress.com/Tamarmag
> > > > Lots of new art & designs ~ come and look!
> > > > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
> > > >
> > > >
> > > >
> > > > -----------------------
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> >
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> > > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> >
>
> ____________________________________________________________________________________
> > > Need Mail bonding?
> > > Go to the Yahoo! Mail Q&A for great tips from
> > Yahoo! Answers users.
> > >
> >
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> > >
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> > >
> >
> >
> >
> > --
> >
> >
> > Kendall
> >
> > An unreasonable man (but my wife says that's
> > redundant!)
> >
> > The reasonable man adapts himself to the world; the
> > unreasonable one
> > persists in trying to adapt the world to himself.
> > Therefore, all progress
> > depends on the unreasonable man.
> >
> > -George Bernard Shaw 1856-1950
> >
> > -----------------------
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> >
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> >
>
>
>
>
>
> ____________________________________________________________________________________
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> with the Yahoo! Search weather shortcut.
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>
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-- 


Kendall

An unreasonable man (but my wife says that's redundant!)

The reasonable man adapts himself to the world; the unreasonable one
persists in trying to adapt the world to himself. Therefore, all progress
depends on the unreasonable man.

-George Bernard Shaw 1856-1950

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