Hey Beth (sounds like I'm having a conversation with myself).  Do you mind
if I ask what level was your spinal lesion?


Beth the OT

-----Original Message-----
From: St. John's University Cerebral Palsy List
[mailto:[log in to unmask]]On Behalf Of Beth Anderson
Sent: Sunday, April 30, 2000 12:28 PM
To: [log in to unmask]
Subject: Re: hi


Hi Beth,

Yes, I have always had movement difficulties.  I wore braces up til age 14,
then
the doctor thought I would be ok to remove them.  Quite frankly I think I'd
be
better off if he hadn't done that.  I can walk without 'assistance', short
distances, but if I'm going shopping or something, I use a "mobilator",
which is
like a walker, but has wheels instead of rubber stoppers, and you don't have
to
pick it up, each step you take.  You are correct about the 3 kinds of SB, I
had
"the worst" myelomeningocele, which causes paralysis usually, and nerve
damage.
I've got both -  have literally no feeling below the knee -  walking for me,
must be similar to what a person experiences if they walk with prosthesis
after
amputation.  No feeling - but I do "hear" the feet hit the floor......

Bobby, in looking at the ACM page (Arnold-Chiari malformation), I see a lot
of
symptoms there, that I've seen listed for CP..........

http://www.chiari.com/faq.htm

Asdi, that's interesting - as my hand also is - although I do not notice it
myself.  My mom told me that "I held it funny" a lot of the time, when I was
growing up.  Says she has not noticed me doing it lately - and I'm unaware
of
it, but I must have some kind of thing going on with one of my hands.......

Thanks for your help,
Beth

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