Hey Beth (sounds like I'm having a conversation with myself). Do you mind if I ask what level was your spinal lesion? Beth the OT -----Original Message----- From: St. John's University Cerebral Palsy List [mailto:[log in to unmask]]On Behalf Of Beth Anderson Sent: Sunday, April 30, 2000 12:28 PM To: [log in to unmask] Subject: Re: hi Hi Beth, Yes, I have always had movement difficulties. I wore braces up til age 14, then the doctor thought I would be ok to remove them. Quite frankly I think I'd be better off if he hadn't done that. I can walk without 'assistance', short distances, but if I'm going shopping or something, I use a "mobilator", which is like a walker, but has wheels instead of rubber stoppers, and you don't have to pick it up, each step you take. You are correct about the 3 kinds of SB, I had "the worst" myelomeningocele, which causes paralysis usually, and nerve damage. I've got both - have literally no feeling below the knee - walking for me, must be similar to what a person experiences if they walk with prosthesis after amputation. No feeling - but I do "hear" the feet hit the floor...... Bobby, in looking at the ACM page (Arnold-Chiari malformation), I see a lot of symptoms there, that I've seen listed for CP.......... http://www.chiari.com/faq.htm Asdi, that's interesting - as my hand also is - although I do not notice it myself. My mom told me that "I held it funny" a lot of the time, when I was growing up. Says she has not noticed me doing it lately - and I'm unaware of it, but I must have some kind of thing going on with one of my hands....... Thanks for your help, Beth -- Don't forget to visit http://rvs.netporch.com/ for RVS fan pics, rvsfans starchat.net chat room, and instructions for the rvsfans mailing list.