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"St. John's University Cerebral Palsy List" <[log in to unmask]>
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From:
"Joy C. Liebeskind" <[log in to unmask]>
Date:
Sat, 19 Aug 2000 22:10:43 -0400
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Ladies--You are both great roll models...my daughter Sarah is 12..can't wait
to be 13. She is in a wheelchair-no balance, no protective reflexes..totally
dependent for care... But has a great smile, red hair & is very verbal.  Her
personality will take her everywhere.  She functions more like a 9-10 year
old..but I hope she will be able to live independently some day...not
because I don't want to care for her, but I don't want her to be cheated out
of the experience..right now it doesn't interest her at all.she says she
will always live with her Mom...but as friends start to talk of going away
to school etc as they alll get older, I hope she will dream of those things
also...Joy
----------
>From: Magenta Raine <[log in to unmask]>


>Hi Beth,
>
>My Mom was the same way. I don't think she ever really accepted my cp. My ex
>husband referred to the tension between me & Mom as invisible arrows.
>
>But don't sell yourself short, Beth, because you have gone to college and
>have a job, and live on your own. That will be very inspiring to a young
>girl.
>
>Yes, until I came on-line, I had very few role models. I still think about
>Helen Keller and the things she faced. But I view it more as a story of a
>supported life, or an enabled life, and I think of it as a model of sorts for
>the independent living movement.
>

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