Kat
Most people who see me on the street view me as defective. They ignore the
name plate on the back of my wheelchair the says:
"Bob Segalman, Ph.D., Sc.D. (Hon.) - the only American with cerebral
palsy known to hold two doctorates"
- Bob
-----Original Message-----
From: Cerebral Palsy List [mailto:[log in to unmask]] On Behalf Of
Kathy
Sent: Wednesday, July 30, 2008 4:56 PM
To: [log in to unmask]
Subject: Re: Genetic Link to CP??
Well, I don't consider myself a "defect," either (or else I'd be sitting
at home doing nothing, like a lump) but unfortunately AB people think we
are. :( Hell, I know plenty of deaf/HOH people who don't want to
identify themselves as disabled because they don't want to be seen as
defective - of course that means they don't wear the hearing aids or
cochlear implant processors that could help them so much.
You really stirred up some hornets with this one! ;)
Kat
Linda Macaulay wrote:
> James,
>
> Read or don't read what I post to the list. Form your own thoughts
> and opinions and express them as you like. I got the email and
> thought it would be worthy of some comment....and apparently I was
> right ;)
>
> For the record, I like who I am and certainly don't think I am
> DEFECTIVE...One of the reasons the article title made me react so
> vehemently "No Way!" However, I was intrigued and read on and perhaps
> there is a grain of salt to a genetic connection that may make
> conditions such that CP COULD occur. Certainly doubt it would ever be
> found to be like Down's Syndrome or other genetic diseases.
>
> Linda
>
> On Jul 30, 2008, at 5:41 PM, James Fee wrote:
>
>> [log in to unmask] wrote:
>>> Hang on, I don't think Linda was calling CP a genetic defect, just
>>> that CP
>>> could be caused by genetic mutations.
>>>
>>
>> I don't think she CALLED it anything, just suggested we read an
>> article about it might be..
>>
>> Jim Fee
>>> Kat
>>>
>>> Original Message:
>>> -----------------
>>> From: James Fee [log in to unmask]
>>> Date: Wed, 30 Jul 2008 17:17:51 -0400
>>> To: [log in to unmask]
>>> Subject: Re: Genetic Link to CP??
>>>
>>>
>>> I really wish people would get this straight, and I don't know why
>>> if urks me SO MUCH that they don't, perhaps its a male virility thing.
>>>
>>> There is a genetic defect that causes a lower of calcium in the
>>> bones, children born with this defect break bones wille-nillie...in
>>> fact some parents have been accused on child abuse because of it.
>>> But the broken bones ARE NOT a genetic defect the lower calcium is.
>>>
>>> ITS THE SAME WITH CP, DAMN IT. CP (simplified to the ridiculous) is
>>> broken nerve fibers. SOMTIMES those broken nerve fibers ARE CAUSED
>>> by a genetic defect in the Mom, BUT CP IS NOT a genetic defect.
>>>
>>> Okay, I'll go back to my corner now.
>>> Jim Fee
>>>
>>> Linda Macaulay wrote:
>>>
>>>> Here's something I found on BabyCenter -- take a look!
>>>>
>>>> Australian study seeks genetic roots of cerebral palsy
>>>>
>>>>
>>>>
>>>
http://www.babycenter.com/204_australian-study-seeks-genetic-roots-of-cerebr
>>>
>>> al-palsy_5234805.bc
>>>> (If clicking doesn't work, simply cut and paste the link into your
>>>> Web browser.)
>>>>
>>>>
>>>> When I first saw the title, I thought "No way!", but then in
>>>> reading it, maybe...
>>>>
>>>> Heck, my mom and I both have Factor V Leiden which is a genetic
>>>> mutation to be more prone to blood clots. When we learned I had it
>>>> and then mom too, we realized that was probably why she had so many
>>>> miscarriages and that I came early...placenta bloodclotting...thus
>>>> why I must take injections of blood thinner when pregnant and be
>>>> monitored closely...
>>>>
>>>> Any thoughts?
>>>>
>>>> Linda
>>>>
>>>>
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