Kat Most people who see me on the street view me as defective. They ignore the name plate on the back of my wheelchair the says: "Bob Segalman, Ph.D., Sc.D. (Hon.) - the only American with cerebral palsy known to hold two doctorates" - Bob -----Original Message----- From: Cerebral Palsy List [mailto:[log in to unmask]] On Behalf Of Kathy Sent: Wednesday, July 30, 2008 4:56 PM To: [log in to unmask] Subject: Re: Genetic Link to CP?? Well, I don't consider myself a "defect," either (or else I'd be sitting at home doing nothing, like a lump) but unfortunately AB people think we are. :( Hell, I know plenty of deaf/HOH people who don't want to identify themselves as disabled because they don't want to be seen as defective - of course that means they don't wear the hearing aids or cochlear implant processors that could help them so much. You really stirred up some hornets with this one! ;) Kat Linda Macaulay wrote: > James, > > Read or don't read what I post to the list. Form your own thoughts > and opinions and express them as you like. I got the email and > thought it would be worthy of some comment....and apparently I was > right ;) > > For the record, I like who I am and certainly don't think I am > DEFECTIVE...One of the reasons the article title made me react so > vehemently "No Way!" However, I was intrigued and read on and perhaps > there is a grain of salt to a genetic connection that may make > conditions such that CP COULD occur. Certainly doubt it would ever be > found to be like Down's Syndrome or other genetic diseases. > > Linda > > On Jul 30, 2008, at 5:41 PM, James Fee wrote: > >> [log in to unmask] wrote: >>> Hang on, I don't think Linda was calling CP a genetic defect, just >>> that CP >>> could be caused by genetic mutations. >>> >> >> I don't think she CALLED it anything, just suggested we read an >> article about it might be.. >> >> Jim Fee >>> Kat >>> >>> Original Message: >>> ----------------- >>> From: James Fee [log in to unmask] >>> Date: Wed, 30 Jul 2008 17:17:51 -0400 >>> To: [log in to unmask] >>> Subject: Re: Genetic Link to CP?? >>> >>> >>> I really wish people would get this straight, and I don't know why >>> if urks me SO MUCH that they don't, perhaps its a male virility thing. >>> >>> There is a genetic defect that causes a lower of calcium in the >>> bones, children born with this defect break bones wille-nillie...in >>> fact some parents have been accused on child abuse because of it. >>> But the broken bones ARE NOT a genetic defect the lower calcium is. >>> >>> ITS THE SAME WITH CP, DAMN IT. CP (simplified to the ridiculous) is >>> broken nerve fibers. SOMTIMES those broken nerve fibers ARE CAUSED >>> by a genetic defect in the Mom, BUT CP IS NOT a genetic defect. >>> >>> Okay, I'll go back to my corner now. >>> Jim Fee >>> >>> Linda Macaulay wrote: >>> >>>> Here's something I found on BabyCenter -- take a look! >>>> >>>> Australian study seeks genetic roots of cerebral palsy >>>> >>>> >>>> >>> http://www.babycenter.com/204_australian-study-seeks-genetic-roots-of-cerebr >>> >>> al-palsy_5234805.bc >>>> (If clicking doesn't work, simply cut and paste the link into your >>>> Web browser.) >>>> >>>> >>>> When I first saw the title, I thought "No way!", but then in >>>> reading it, maybe... >>>> >>>> Heck, my mom and I both have Factor V Leiden which is a genetic >>>> mutation to be more prone to blood clots. When we learned I had it >>>> and then mom too, we realized that was probably why she had so many >>>> miscarriages and that I came early...placenta bloodclotting...thus >>>> why I must take injections of blood thinner when pregnant and be >>>> monitored closely... >>>> >>>> Any thoughts? >>>> >>>> Linda >>>> >>>> ----------------------- To change your mail settings or leave the C-PALSY list, go here: http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy ----------------------- To change your mail settings or leave the C-PALSY list, go here: http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy