Hi Anu,
You might see if you can still get her the e-stim - our therapist
billed it as PT - since she did the pt with the e-stim machines on her.
Amber avoided all surgery - and it reversed the paralysis and the
atrophying. Even if you could do it after the surgery - it would help in
the future.
Trisha - Mom to Amber 23 - right hemi
-----Original Message-----
From: Cerebral Palsy List [mailto:[log in to unmask]] On Behalf
Of Anu Arsalo
Sent: Tuesday, February 16, 2010 1:47 PM
To: [log in to unmask]
Subject: Re: Rare: Intro/ ? hip dysplasia
Thanks Dawn for your story. It's good to know. We won't even know
until
Friday if she is a candidate for surgery, but the referring doctor
seemed to
think so. How long was your daughter in pain?
Anu
On Tue, Feb 16, 2010 at 10:24 AM, Dawn Cottone <[log in to unmask]>
wrote:
> hello Anu,
> my daughter has mild CP also , she had hip surgery when she was 6.
She
> had what is called a Osteotomy, it wasn't actually the same type of
hip
> surgery your daughter will have but she needed phsycial therapy for
over 7
> months. She also had to go back a year later to take out the hardware
so it
> wouldn't stunt her growth. It was a very tough time, she was
uncomfortable
> and my husband and I had a hard time seeing her in pain. but it is
almost 3
> years and she walks so much better and her balance is better. she even
> thanks us for having the surgery done. so my point is it may be tough
at
> first but I think your daughter will benefit from it.
> Dawn Cottone
>
>
>
>
> ________________________________
> From: Anu Arsalo <[log in to unmask]>
> To: [log in to unmask]
> Sent: Tue, February 16, 2010 11:10:03 AM
> Subject: Intro/ ? hip dysplasia
>
> Hello,
> My name is Anu and I have a 10 year old daughter Tuisku who has mild
CP.
> Her
> right ventrical is abnormally enlarged and that has effected her left
side.
>
>
> This was diagnozed at 3, but I new since she was a baby that something
was
> wrong. I just wasn't take very seriously. My daughter also has Down
> syndrome and that has been our main concern. Tuisku walks with a limp
and
> is all together lobsided, her ankle does not flex well, her left leg
> appears shorter and shoe size is smaller. Tuisku wears shoe inserts,
and
> at
> one point was recommended more extensive support, but that was pulled.
She
> was even recommended e-stim, but the insurance didn't cover it.
>
> Now Tuisku has started to walk with more and more a limp, she
complains
> about pain daily, her back hurts but especially her hip. We saw an
> orthopedic doctor who told us that she has hip dysplasia and might
require
> surgery. We will see a specialist this friday to find out more.
However,
> I
> wanted to reach out here to see if any of you have had this done to
your
> children and could share about your experiences.
>
> My daughter is active and independent. She can walk, run and ride a
bike.
> She is an avid swimmer. It is my understanding that this surgery will
have
> a very long recovery time, she might have to be in a body cast for
long
> time. I hope somebody has better news for me. Also did the surgery
work?
> Was it all worth it.
>
> Thanks in advance.
>
> Anu and Tuisku (10, CP and Ds)
>
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