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Subject:
From:
Bobby Greer <[log in to unmask]>
Reply To:
St. John's University Cerebral Palsy List
Date:
Sat, 30 Oct 1999 11:11:07 -0500
Content-Type:
text/plain
Parts/Attachments:
text/plain (81 lines)
Dana,

        Sorry I did not respond yesterday(Friday) to your response. No, you
are not the person, but I will give her your name and e-mail address. Her
name is Bethany Kirby(or, her married which I forget). I'll be speaking
with her today maybe, or Monday at the latest.

Bobby


>Bobby, if I am that person, have her send me an urgent email. I tend to get
>a lot of spam, and may not have seen the post. :)
>
>Dana
>
>At 09:58 AM 10/29/99 -0500, you wrote:
>>Kyle and Betty,
>>
>>         Kyle's post is somewhere around May, 1999. I know because I'm using
>>part of it in the article I am working on. I did delete the part about the
>>four F's.
>>I am glad you re-posted, Kyle.
>>
>>         On another note, would either of you be interested in volunteering
>>for another interview for one of my students. She is having difficulty
>>contacting her person who volunteered. If Kyle or anyone else would liike
>>to help her out,
>>please contact me off-list. Thanks!
>>
>>Bobby
>>
>>
>> >Betty,
>> >
>> >I had long speaks with my physiatrist at Ohio State University a couple
>> >years ago.  I posted a long-winded dissertation on the list about those
>> >conversations, but I seem to have deleted the post.
>> >
>> >Anyway, this guy (William Pease, M.D.)basically said that the cerebral
>> >lesions are static, but the spasticity causes the joints (and all their
>> >associated viscera) to degenerate faster than those in a "healthy"
>>person of
>> >the same age.  He likened it to driving a car with the tires out of
>> >alignment--the tires will wear faster than if they were aligned.
>> >
>> >He gave me "4-F's" that were associated with increasing spasticity and pain
>> >in SPASTIC CPers:
>> >
>> >fatigue (get enough rest)
>> >fronts (move to an arid climate to avoid rapid barometric changes)
>> >fat arse (move!  stretch those limbs!)
>> >feelings (emotional upheaval and stress (as Bobby alluded to in an earlier
>> >post))
>> >
>> >-Kyle
>> >
>> >BTW-if anyone saved that old posting of mine it might be good to repost if
>> >you can
>> >
>> >
>> >
>> >-----Original Message-----
>> >From: Betty Alfred [mailto:[log in to unmask]]
>> >Sent: Friday, October 29, 1999 10:39 AM
>> >To: [log in to unmask]
>> >Subject: Pain
>> >
>> >
>> >Howdy folks!
>> >
>> >I have what might be a stupid question.  I've been reading the posts about
>> >the Baclofen pump, and I am wondering: is pain due to CP itself, or to
>> >secondary issues as a result of CP -- like joint stress or whatever?
>> >
>> >Please forgive me for asking such a boneheaded question, but I would
>>like to
>> >learn more if I can.
>> >
>> >Thanks for being patient with me!
>> >Betty

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