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Subject:
From:
Connie Margolin <[log in to unmask]>
Date:
Sun, 23 May 1999 12:23:38 EDT
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<<Disclaimer: Verify this information before applying it to your situation.>>

Dear Listmates,

Several people asked me to summarize the radio program yesterday on celiac
disease, featuring Drs. Fasano and Green.  Since I was working in the studio
during the show, I was unable to take notes, but will share with you a little
of what I remember.  Basically, we were attempting to raise people's
awareness of Celiac disease.  Toward that end, the following topics were
covered:  The many faces of celiac disease; how it often does not present
with frank diarrhea and wasting; the progress made in the last decade towards
being able to screen and diagnose the illness more easily; how this has led
to findings of much higher incidence than previously thought; how much
farther ahead other countries are than the US in recognising how prevalent CD
actually is;  the research study now underway in the US to corrrect that.

Also, the physicians outlined how the body responds to gliaden; how the
damage to the intestine then leads to problems in other parts of the body,
e.g. osteoporosis, anemia, nightblindness, etc; again, many of the
difficulties caused by the illness.  There were some calls from listeners,
and there was a brief patch-in of Dr. Michael Freemark, who described
research he is conducting at Duke, to assess whether children with type1
diabetes who also have indicators of CD but are asymptomatic should be placed
on a gluten free diet even thought they feel fine.  Unfortunately, we ran out
of time before we could talk at any length about living with CD.  Other than
my saying that there are now a great many vendors of GF food, and that the
web is a wonderful source of information, the whole "You can handle this
thing" part was not covered.  I did provide the List's web address, as well
as some phone numbers.

If you want to get a copy of the tape, you can go to
<www.peoplespharmacy.com>, or call 1-888-31RADIO and ask for program #268.  I
think the tapes cost $13.

Connie In NC

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