Kyle and Greta,

Short of a noose, should I talk to my PT about stretches for my neck? ;-{)}


On 2/21/08, Cleveland, Kyle E. <[log in to unmask]> wrote:
>
> Greta,
>
> Yep, you need to either increase the dosage of Myobloc/Botox over time,
> or (as I'm doing) take a break from therapy for a while.  It's sort of
> like opiates--the dosage has to increase over time to get the same level
> of pain relief.  The key to effective therapy with M/B is stretch,
> stretch, stretch!  It does little good to get the injections without
> some form of stretching to take advantage of the decrease in tone during
> the drug's half-life.
>
> Kyle
>
> -----Original Message-----
> From: Cerebral Palsy List [mailto:[log in to unmask]] On Behalf
> Of greta von der luft
> Sent: Thursday, February 21, 2008 11:56 AM
> To: [log in to unmask]
> Subject: Re: FDA Warning About Botox Deaths in Children and AACPDM
> stance
>
> Looking at the case studies that are posted on the AACPDM site, it seems
> as
> if the children who were getting the systemic problems or the ones with
> the
> side effects of difficulty with swallowing and breathing, were children
> who
> were GMFCS level V. Children who are GMFCS level V are children who are
> very
> much physically impaired and they usually cannot voluntarily
> move/control
> their head or extremities. I am not a numbers person, but the dosage did
> not
> seem that high in at least one of the reported cases that are posted
> there.
>
> Either way being a peds PT this new information seems a little scary in
> that
> I want to investigate the issue in greater depth.... Be cautious..
>
> Just wondering, in children generally the dosage of Botox needs to
> increase
> with each round of injections so that the efficacy of the drug is still
> present. Does this also need to occur in adults?
>
> Take care,
>
> Greta
>
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-- 


Kendall

An unreasonable man (but my wife says that's redundant!)

The reasonable man adapts himself to the world; the unreasonable one
persists in trying to adapt the world to himself. Therefore, all progress
depends on the unreasonable man.

-George Bernard Shaw 1856-1950

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