Kyle and Greta, Short of a noose, should I talk to my PT about stretches for my neck? ;-{)} On 2/21/08, Cleveland, Kyle E. <[log in to unmask]> wrote: > > Greta, > > Yep, you need to either increase the dosage of Myobloc/Botox over time, > or (as I'm doing) take a break from therapy for a while. It's sort of > like opiates--the dosage has to increase over time to get the same level > of pain relief. The key to effective therapy with M/B is stretch, > stretch, stretch! It does little good to get the injections without > some form of stretching to take advantage of the decrease in tone during > the drug's half-life. > > Kyle > > -----Original Message----- > From: Cerebral Palsy List [mailto:[log in to unmask]] On Behalf > Of greta von der luft > Sent: Thursday, February 21, 2008 11:56 AM > To: [log in to unmask] > Subject: Re: FDA Warning About Botox Deaths in Children and AACPDM > stance > > Looking at the case studies that are posted on the AACPDM site, it seems > as > if the children who were getting the systemic problems or the ones with > the > side effects of difficulty with swallowing and breathing, were children > who > were GMFCS level V. Children who are GMFCS level V are children who are > very > much physically impaired and they usually cannot voluntarily > move/control > their head or extremities. I am not a numbers person, but the dosage did > not > seem that high in at least one of the reported cases that are posted > there. > > Either way being a peds PT this new information seems a little scary in > that > I want to investigate the issue in greater depth.... Be cautious.. > > Just wondering, in children generally the dosage of Botox needs to > increase > with each round of injections so that the efficacy of the drug is still > present. Does this also need to occur in adults? > > Take care, > > Greta > > ----------------------- > > To change your mail settings or leave the C-PALSY list, go here: > > http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy > > -- Kendall An unreasonable man (but my wife says that's redundant!) The reasonable man adapts himself to the world; the unreasonable one persists in trying to adapt the world to himself. Therefore, all progress depends on the unreasonable man. -George Bernard Shaw 1856-1950 ----------------------- To change your mail settings or leave the C-PALSY list, go here: http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy