I would DEMAND an IEP meeting WITH the medical people Present and PARTICIPATING. However, I would be cautious about blindly accepting their ideas, IF they say Mary can only go so far. It is a well known fact< that if you do not push a child, they will not achieve much. Children need to believe they can reach for the stars, even with a disability. In your IEP I would demand she not be isolated! You want to teach her how to deal with potential bullies, but at the same time, you have to teach her how to make friends! If she has one or two friends, they can form an alliance against bullies.
In California, there is a Supported Life conference every year, it is for people who have developmental disabilities. It is so incredible to see how far we have come in the last 30 years. People with Down syndrome were once thought to be too "retarded" to be educable, and now there are many attending college, and starting their own businesses. It's truly inspiring. So, take heart!
Thanks,
Tamar
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Tamar Mag Raine, Commissioner,
Oakland Mayor's Commission on People with Disabilities
[log in to unmask]
http://www.zazzle.com/TamarMag*
www.cafepress.com/tamarmag
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
________________________________
From: JOHN RUNER <[log in to unmask]>
To: [log in to unmask]
Sent: Monday, May 11, 2009 10:56:20 AM
Subject: Re: Does Any one Homeschool? Part Two!
This is the very technology and idea that the school is resistant too! Yet it is medically recommended! Yes she gets O.T. at school yet that is one person that says mental fatigue or physical fatigue are not reasons to adjust her school day and she is just working us and we should make her go all day again against medical advice! I understand that most are adults and that is very beneficial , infact I am glad because speaking with you helps with long term goals for Mary. I am being told by the medical side what Mary's abilities and weaknesses are and how to support those abilities, then the school builds a wall. I am locating groups for assistive tech and service dogs even, but the school seems to disagree with the medical findings. Please understand these medical professionals have tracked Mary from birth until now they know where she started and where she should be headed.
Thanks,
I am calm but highly frustrated,
John Runer
> Date: Mon, 11 May 2009 13:34:45 -0400
> From: [log in to unmask]
> Subject: Re: Does Any one Homeschool? Part Two!
> To: [log in to unmask]
>
> I guess my question now becomes, is she going through any occupational
> therapy? Do you have any interactions with assistive technology groups?
> Because surely there is some way that Mary could exhibit her skills by using
> such tools as story boards, computers, special software, etc., etc that the
> school would let her use.
>
> Please understand that most of the people on this list are adults with
> cerebral palsy, not parents, and we are bound to see things a little bit
> differently from parents' viewpoints.
>
> Kat
>
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