Kendall,

That's a great idea, and certainly something I would want to be a  
part of.  I, too, am starting to feel the effects of aging having  
CP.  Of course, I attribute much of my issues to not exercising the  
past two and a half years (something about getting pregnant and now  
having a toddler leaving no time for exercise - of the formal kind  
anyway!)  For me, biggest issues are balance and strength.  I avoid  
steps and curbs completely now as I will fall more often than not if  
nothing is there to hold on to.  Thank God ADA has made ramps pretty  
mainstream or I would be in trouble.

Linda
On Jan 31, 2008, at 1:20 PM, Kendall D. Corbett wrote:

> Susan,
>
> My wife Janet (who also has CP) and I "feel your  
> pain" (figuratively if not
> literally). We're both 47.  We've both got arthritis in several  
> areas of our
> bodies and degenerative disk disease as well as repetitive strain  
> injuries
> in our better hands and arms.
>
> Ken,
>
> You asked once how the Sonocur therapy worked for Janet's arms.  I  
> wish I
> could say that it was a great success, but it wasn't.  I'd say  
> she's gtten
> about a 10 percent improvement.  The orthopod says it may take up  
> to six
> months for the maximum effect to be seen, so we'll hold on a little  
> longer.
> By about the end of February, we'll look at nerve conduction  
> studies and
> possibly surgery from there.
>
>  I think we need to approach a major university and get them to do  
> a study
> on "Aging with CP" or possibly aging with other significant  
> disabilities as
> well.  I'd suggest UW (Wyoming), as that's where I work, but we'd  
> need a
> more major university that has access to more people.  Maybe we  
> could get
> funding from ADD (Administration on Developmental Disabilities) or RSA
> (Rehab Services Administration) to fund it.  I'll check it out @
> www.grants.gov later today.
>
> On Jan 30, 2008 9:11 PM, ken barber <[log in to unmask]> wrote:
>
>> you do have our understanding as it appears to get us
>> all.
>>
>> --- Susan Moskowitz <[log in to unmask]>
>> wrote:
>>
>>>      Aging with CP has caught up with me too, as of
>>> yesterday.  I banged up my right knee a few days ago
>>> just going  about my normal activities, no big deal.
>>> Only problem was pain kept getting worse not better,
>>> despite my efforts to rest and prevent further
>>> strain. I gave in and visited the local emergency
>>> room yesterday, where I was promptly diagnosed with
>>> a badly bruised kneecap and osteoarthritis!  I am
>>> now home with instructions to take it easy for
>>> several days and swallow Advil four pills at a
>>> time,every eight hours until I can arrange an
>>> appointment with an orthopedist.   My age as of
>>> yesterday,46 years, 5 months,9 days.
>>>
>>> Susan
>> --
>> Kendall
>>
>> An unreasonable man (but my wife says that's redundant!)
>>
>> The reasonable man adapts himself to the world; the unreasonable one
>> persists in trying to adapt the world to himself. Therefore, all  
>> progress
>> depends on the unreasonable man.
>>
>> -George Bernard Shaw 1856-1950
>>
>
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