Hi, Heidi, I'm Kat, a list mod and a 54-year old paraplegic CP.   I  
must say I've never heard of the "Teddy Bear pose" until your post.   
Please remember that CP is almost never the same from person to  
person and so it takes a qualified specialist to diagnose the  
condition (it's a condition, NOT an illness, IMHO).  If you can, find  
a pediatric neurologist or orthopedist to test your child because   
neurological symptoms can be the same in other conditions besides  
CP.  And of course there are several types of CP and most CP people  
have disabilities other than the neuromuscular disabilities to deal  
with. So you'll likely end up with a treatment plan that will deal  
with all of that,  The earlier you start the better it is.

In my case,.I also have had a hearing loss since I was eight years  
old and I have just gotten a cochlear implant.  I also have other  
problems that seem to be common to earlier ageing in those with CP -  
largely due, I suspect to the fact that we don't move around as much  
and don't take care of ourselves as well as we should.  When I was  
born 3 months early, I weighed two pounds and the doctor told my  
mother I'd not live beyond a day, and later on when my CP was  
diagnosed, they told her I'd be institutionalized. Bah!  Don't listen  
to those who will try and limit what you and your son will do.

Kat

On Jul 12, 2007, at 3:00 AM, heidi tibollo wrote:

> Hi
> Sorry Kendall- somewhat distracted. I've just signed up. I'm a mom  
> of two boys- 41/2 and 13 months. Our physician suspects a  
> neurological problem with our 13 month old due to delays and some  
> gagging issues. Of course, now I look back on my pregnancy and see  
> every possible reason or cause (the asthma, the GD, etc.) and have  
> lots of guilt. Will go the the CP clinic in October, in the mean  
> time we are getting county assessments and most likely PT. Thank  
> you for the link- I was very interested in a picture also but will  
> just wait to see the MD before I start self-diagnosing here.
> Thanks!
> Heidi
> PS Did not know that hydrocephalus could cause CP (makes sense).  
> Were you a baby when this happened? Do you now have a shunt? Was a  
> neuro nurse.... (mostly TBI and strokes)
>
> ----- Original Message ----
> From: C-PALSY automatic digest system <[log in to unmask]>
> To: [log in to unmask]
> Sent: Thursday, July 12, 2007 12:01:06 AM
> Subject: C-PALSY Digest - 10 Jul 2007 to 11 Jul 2007 (#2007-129)
>
>
> There are 2 messages totalling 73 lines in this issue.
>
> Topics of the day:
>
>   1. Teddy bear pose (2)
>
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> ----------------------------------------------------------------------
>
> Date:    Wed, 11 Jul 2007 01:16:20 -0400
> From:    Heidi Tibollo <[log in to unmask]>
> Subject: Teddy bear pose
>
> Hi-
> Does anyone have a picture or can discribe the "teddy bear pose"=20
> Son will go in for assessment in Oct. MD suspects CP. Showing signs,
> Heidi
>
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> ------------------------------
>
> Date:    Wed, 11 Jul 2007 10:54:56 -0600
> From:    "Kendall D. Corbett" <[log in to unmask]>
> Subject: Re: Teddy bear pose
>
> Heidi,
>
> This page kind of describes the "teddy bear pose" and talks about a
> Mom's experience with her child's diagnosis with CP.  Are you new to
> the list?  If not I missed your intro.  I'm Kendall, 46 with CP
> secondary to hydrocephalus, and am married to Janet who also has CP.
> We're both 46.  How old is your son?
>
> http://www.epinions.com/content_3393888388
>
>
> On 7/10/07, Heidi Tibollo <[log in to unmask]> wrote:
>> Hi-
>> Does anyone have a picture or can discribe the "teddy bear pose"
>> Son will go in for assessment in Oct. MD suspects CP. Showing signs,
>> Heidi
>>
>> -----------------------
>>
>> To change your mail settings or leave the C-PALSY list, go here:
>>
>> http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy
>>
>
>
> -- 
>
>
> Kendall
>
> An unreasonable man (but my wife says that's redundant!)
>
> The reasonable man adapts himself to the world; the unreasonable one
> persists in trying to adapt the world to himself. Therefore, all
> progress depends on the unreasonable man.
>
> -George Bernard Shaw 1856-1950
>
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> End of C-PALSY Digest - 10 Jul 2007 to 11 Jul 2007 (#2007-129)
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