Ken,

Where, how often, and how many botox injections are you getting?  Janet
gets really drowsy with the level of oral baclofen that she takes now,
so she's taking Provigil (modafinil (sp?)) to counteract that.  Feel
free to respond "off-list" if you'd prefer.


Kendall

Kendall Corbett

An unreasonable man (but my wife says that's redundant!)

The reasonable man adapts himself to the world; the unreasonable one
persists in trying to adapt the world to himself. Therefore, all
progress depends on the unreasonable man.

-George Bernard Shaw 1856-1950

-----Original Message-----
From: ken barber [mailto:[log in to unmask]] 
Sent: Wednesday, July 06, 2005 7:47 PM
To: [log in to unmask]
Subject: Re: CP and the baclofen pump

i can not take oral baclofen, or Dantrium becouse of
side effects, but, zanaflex and botox is working well
for me. everybody different.
 i imagine that i'd have the side effects no matter
how the baclofen was delivered.

--- Kendall David Corbett <[log in to unmask]> wrote:

> Does anyone have any experience with using a
> baclofen pump (either
> personally or professionally?).  Janet and her
> neurologist are having a
> hard time getting her spasticity under control with
> oral baclofen,
> Dantrium, and Valium.  It looks like the next best
> option is probably
> the pump.  We'd like to hear about any of your
> experiences, good or bad,
> to help her/us with that decision.  She's presently
> getting PT,
> including iontophoresis (sp?) to help with the
> spasticity in her arms.
> Her doc has diagnosed a whole bunch of syndromes in
> her dominant (left)
> hand/arm, including thoracic outlet syndrome and
> cubital tunnel
> syndrome.  The ionto seems to be helping with the
> pain somewhat, and the
> PT is somewhat helpful, but our insurance limits PT
> for something not
> related to a specific injury to 10 in a calendar
> year.  As she's using
> her right arm more to compensate for decreased
> function in the left,
> it's starting to hurt, too.
>
>
>
> Kendall and Janet Corbett
>
>
>
> An unreasonable man (but my wife says that's
> redundant!) and a
> reasonable woman (when she's not in too much pain.)
>
>
>
> The reasonable man adapts himself to the world; the
> unreasonable one
> persists in trying to adapt the world to himself.
> Therefore, all
> progress depends on the unreasonable man.
>
>
>
> -George Bernard Shaw 1856-1950
>
>
>


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