Hi Betty- welcome. My daughter is now 15 with CP & Turners syndrome,
bilateral cataracts,  & some degree of MR. She sees Dr Nuzzo, and has
since she was 4 when he did her hips. We see Paul Jordon out on Long
Island who is a podiatrist, & Mike Smith who  with him & is an
orthotist. They work well with Dr. Nuzzo.  I hope Heather can get some
help from Dr. Nuzzo-We are in CT , but love him & think he is well worth
the trip.   Joy

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>
>>Hi,
>>I joined the list on the advice of Pam...and here I am introducing myself on
>>the advice of Kat!  It first I thought I was on the wrong list!..Its great you
>>find other things to converse about besides CP.
>>
>>I am the mother of a grown child/adult with CP.  I am on the CPP  list and am
>>finding that the older my daughter gets the less helpful the list is.  I do
>>remain on the list and respond where there is something encouraging I can say
>>to a parent with a child similar to my own.
>>
>>I always tell parents...no one knows your child like you do!...I raised her
>>on that prospective.
>>
>>Heather is almost 27 now and was diagnosed with CP at age 2.  She had her
>>first surgery at age 3 and 8 or so more since.  A few were due to problems
>>other
>>than her CP...but still related to her CP.  Shes the type of person when the
>>Dr says...1 percent will have this problem...Shes that 1 percent always.
>>
>>Heather did well in school.  Was an Honors student in HS and went on to study
>>Journalism in Boston.  She spent the summer between HS and College traveling
>>in France with an exchange student who spent time with us.  While in college
>>she also went off to Europe for a year where she lived in a castle in Holland
>>and traveled much of Europe.  So she has been more than successful.  Shes
>>now a
>>sportswriter here in NJ.  She enjoys her job but its time for her to move on
>>to other horizons...meaning maybe a bigger paper or PR.
>>
>>The older Heather gets the harder it is to find Drs who are familiar with CP
>>in Adults.  When we do find one we tend to hold on to that DR.  Shes has her
>>Dr horror stories as well.  At the moment she is having pain in her
>>legs.  From
>>her toes to her hips.  Not knowing who to see we started out at her
>>podiatrist who did her last Legthenings.  Trust me..25 years ago I wouldnt
>>have let a
>>podiatrist touch her.  This guy is great.  We spent an hour with him going
>>over
>>her probelms.  He sent her to see a Rheumatologist.  Shes had lots of test
>>done and we are awaiting the results.  Shes also had problems with
>>Uveitis...which could mean an immune problem.  So far shes still in pain
>>and the
>>Anti-inflammatory isnt helping her at all.  She wakes a few times a
>>night.  I made her
>>an appt to see I think his name is Dr Nuzzeo in North Jersey.  I emailed him
>>and he said he would see her.  She doesnt go until Sept 3.  She cried what
>>am I
>>supposed to do until then.  I have no idea what to tell her.  Shes been
>>exercising to see if that improves it.  So far it hasnt.
>>
>>Last night she won an audition for a sports announcer at a contest in
>>Philadlephia.  She will do a radio show and sports on the local comcast
>>station.  We
>>are more than excited for her.  She also won a trip and $500 to spend on
>>Jewelry!  She went against 4 men and the lady won!
>>
>>Hopefully we will find the reason for her pain in the meantime.  Shes one who
>>can stand pain and lives with it well.  It doesnt usually keep her from her
>>daily routines.
>>
>>Thank you for listening...as my kids say...Mom get to the point!  I guess you
>>can see why I have a daughter who writes!..
>>
>>I would appreciate any thoughts anyone could give me on the problems shes
>>having.  Maybe someone has been this route.  It cant help to ask!
>>
>>Enjoy your weekend,
>>
>>Betty Green
>>Wenonah, NJ
>>
>>
>
>Asdis night owl mom of the purring cats, Agatha Mist queen of our apartment
>and Odinn Thistill my little baby!!!
>implanted with CI NC24 18 Juni 2003.
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>Faith, Hope and Love.
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