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Subject:
From:
"Denise D. Goodman" <[log in to unmask]>
Reply To:
St. John's University Cerebral Palsy List
Date:
Thu, 20 May 1999 11:48:49 EDT
Content-Type:
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When I read the last few posts, it was as if someone gave me a left jab right
in the solar plexus. You guys have hit me hard, ESPECIALLY Kyle with his
combination punch.

Kyle said, "It's been very difficult for me to accept the idea that I "can't"
do things that were once (not long ago) easy, so I guess I'll just suck it up
until I can't stand the pain anymore. ....I think what gets me more than
anything is the rapidity with which my balance, flexibility, pain-level got
bad. If it had been a relatively gradual process I think I could have coped
better emotionally. I get to thinking, "Sh*t, if it's this bad now, what's
it going to be like in five years?"

Kyle? Could you do me a favor dear? Please get out of my brain! Stop
taking psychic dictation from my soul and putting in print for everyone to
read. :D

Whoever coined the phrase, "growing old gracefully" obviously didn't have
cerebral palsy. If I hadn't lived the first 30 years of so as if I didn't
have cp, perhaps these last few years would not be quite so traumatic. I'm
stubborn and independent. Always have been, always will be! (At least
that's what I keep telling myself.) However, there is a dark doubt which
creeps in and haunts me. "What's it going to be like in five, ten, twenty
years?" The images which come to mind scare the bejesus out of me, so I push
them away by physically PUSHING myself past the limit. I'm trying to prove
something to myself, and I ALWAYS end up suffering (physically).

Kyle also said, "I was on the water only two hours or so, but when I got home
I could barely move and couldn't stand up straight at all. ... I was making
my body do things it really shouldn't have been doing. ... But--doggone
it!--it was worth it! "

Oh yeah! I know this line well. When hubby comes home and I can hardly move
at all, my explanation always starts with, " I was only....." Usually I
follow up with, "landscaping the yard, power washing the house, scrubbing the
tiles in the shower for two hours, standing on a ladder trying to hang
curtains..."

All the things a (yeech) "normal" person of my age can do with relative ease.
 I conveniently "forget" (deny) to take into account I'm trying to make my
body do things it really shouldn't be doing in the first place. - And here
is the REALLY scarry part.... Just like Kyle, I as I shift around on the ice
pack and swallow another handful of pharmaceuticals to ease the pain I smile
to myself and think, "Yep! Dog Gone it! It was worth it! "

By now you are probably wondering where "A Really Big Straw" comes into play.
 Well, the wait is over. Kyle had said, "I guess I'll just suck it up until
I can't stand the pain anymore." He went on to say, "The other thing that
sucks is that if I take enough pain-killers/antispasmodics to let me
hunt/hike/fish without undue pain, then I'm not really being safe."

Ah yes, "sucking it up." But you see here is the problem, with the passing
of each year, I find I need a much bigger straw. I too "suck up the pain"
ignore my body's wailing pleas to stop, ... Stop, ....STOP! Under the docs
suggestion, I've gone the last two weeks without the pain killers. Of course
I have been taking the maximum dose of aspirin available. I also noticed I
still work myself like a beast of burden, except now, I'm suffering all the
way through and after (instead of just after). I too have been doing things
under the influence of pain-killers, only to find out later I did get hurt,
just didn't feel it at the time. You know? Smashed myself with the shovel
in the garden, or cut myself with a knife only to find out it was a really
deep and dangerous cut that just didn't hurt so bad. I even broke my toe,
but didn't think it was bad since it only hurt a little bit.

So? What was the point of my post? Your guess is as good as mine. Maybe
like Trisha's friend, I needed to vent. I hate to feel my mortality and the
limits of my abilities. [One of the down sides to being an ego maniac with a
God complex :D] When reality sneaks in and hits, it hits hard. - Anyway,
thanks for letting me vent. And Kyle? Don't worry about sneaking in and
taking a peak at my soul. In fact, I find much comfort in knowing I'm not
the only dope out there who doesn't listen to their body and of course common
sense :D - Denise.

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