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Listmates, I'm such a baby. I'm all better now. I was whining about my
escalating GI symptoms that were so severe, it was interfering with my
ability to work. I've been off eggs & yeast, most sugars & starches
except for one or two small servings of rice every day for a week now.
I've been living mostly on lean meats, veggies, a few fruits & tofu. I
can't believe how much better I feel. Now that I'm feeling better, I
remember feeling this way when I first started the GFCF diet -- euphoric
-- before I started GF baking. In retrospect I can trace all my current
GI problems back to August when I began GF baking which relies heavily on
eggs, yeast and of course carbohydrates. I guess I went overboard, for
my personal tolerance level that is. I was also whining about how I was
going to manage my diet plus the diets of the three men I cook for (two
of whom are GFCF, but tolerate starches & sugars well.) Below is the
jist of some wonderful suggestions & advise. [My comments in brackets.]
I know for sure now that eggs & baker's yeast are the major part of the
problem. I'll continue to experiment a bit to discover what else I have
to give up! ~Valerie in Tacoma, WA
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Hi! MANY MANY Celiacs also have other food allergy problems! I was
diagnosed as being celiac, and I didn't get any better after a year and a
half of being totally gluten free! I was so short of breath I was on
steroids and breathing treatments 4 times a day! ... I found out that it
was ALL caused from food allergies, (which are VERY common with Celiacs).
I had my blood tested by a lab in Fla.... I have no problems with
breathing now and most of my other symptoms are either totally gone, or
MUCH better! I was literally bedridden before and I have my life back!
If you are interested, call Lisa Durow at Better health U.S.A. at
1-800--684-2231 ext. 6251. Their website is www.betterhealthusa.com.
--Lisa Hughes
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Get a book called "Nourishing Traditions", by Sally Fallon...It is a
combination nutrition basics and cookbook. Although it is not a GFCF
cookbook, she does not believe in a heavy grain/starch diet ... Also,
Dr. Mercola has diet guidelines on there which are grain-, sugar-, and
dairy-free...he has an online cookbook (for a nominal fee) that he claims
will help you follow this diet. --Mel
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Soy gives me the same symptoms as gluten... I never got better until I
found that I had a problem with soybean. I understand that 50% of the
normal population is soy sensitive, so chances are that might be the
problem... [Thankfully, I'm one of the 50% who are not soy sensitive.]
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If you have not found Lucy's Kitchen Shop, you need to. She has a
cookbook that is wonderful. I feed my very picky husband and 2 small
children without a complaint. --LJ
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After being diagnosed with Celiac disease, I followed a strict gluten
free diet. After 18 months on the diet, I was still experiencing severe
diarrhea daily and my health was getting worse. This past August 1st I
decided to start the SCD. After the first month on the diet, I started
seeing improvements in my condition, (slowly but surely). I was so
sick, I was desperate to try anything and I'm glad I did. It states
right in the book, "Breaking the Viscous Cycle", that if your condition
doesn't improve after 1 month on the diet, the diet isn't going to work
for you. What is a month when you have been feeling crummy for so
long?!? --Judith
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As you know I'm also GF with fibro. The HG diet [a low carb high protein
diet] is really not bad and once I got used to it carbs don't interest me
at all anymore. Even acorn squash tastes too sweet for me. I had to go
cold turkey. Even cut out Atkins bars. But my IBS has improved
substantially. I eat really creative things - salmon with caviar and
seaweed, steamed greens. (salt has become my new sugar - which is useful
since I have such low BP). All kinds of burgers (buffalo, turkey, lamb)
can make a great stir-fry. I add plantains for sweetness. Sometimes some
cranberries but I take it easy on fruit. Throw in mung beans,
red-peppers, parsnips, scallions, etc. It's actually really satisfying. I
have huge sardine salads for breakfast with ground flax seeds and
avocados and arrugala, some blueberries. Etc. You can really indulge a
high protein diet and still enjoy eating. There's also a chocolate powder
drink mix from Ah-laska that has no carbs. This will also stabilize your
blood sugar and make you less tired / less mood swings. You'll also lose
weight and people will tell you how toned you look.Take care. --Steve
[Hmmm......I'm just imagining: "Honey, what's for dinner?" "Salmon with
caviar & seaweed." "Sorry, I gotta run, Dear, I'm late for an
appointment at McDonalds."]
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I urge you to remain open to a modified Paleo Diet along with food
rotating. Not a silly rotating diet but the real thing. I got excellent
results by combining my list of identified allergy triggers with
Nicolette M. Dumke's book "5 Years Without Food" (Amazon). I stayed on
it for over a year. I never had a bad meal and actually enjoyed the
challenge of exploring paleo and rotation. Rotating my food allowed me
to clearly identify what I was allergic to beyond the lists my blood test
provided. I kept a food diary which also helped. I was especially
surprised at the immediate relief at rotating my oils! Never suspected
them at all. As for the 3 men in your life, most men I know actually like
the paleo thing better. It's usually habit that wants bread and
processed foods. My solution for processed carbs and potatoes is
exploring ethnic markets for simple root vegetables and treats. I live in
a Pacific Rim city so Asian produce is readily available. I replace
mashed potates with Taro or Name or yams. Potato chips replaced by taro
chips. There hasn't been bread in my house in 15 years. And i don't miss
it! I discovered Southeast Asian GFCF pastries which are heavenly.
There is hope. Be patient and vigiliant about keeping records and you
will find your personal solutions. Good cooking and good luck.- Joelle
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I hear ya! I finally started the SCdiet and it has really, really helped
me. I felt deprived in the beginning but what Elaine G. says is
correct--there is a bacteria that causes many of our problems. Once I
cut out complex starches, including corn, potatoes, rice,etc---I started
to detox rapidly. I also cut out sugar--all of it. And,--I am getting
better. There are many, many ways to cook on this diet--and I know you
do cook. Lorri
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I just read an article from Gluten Free Living regarding how many Celiacs
have other problems including Soy, Lactase Enzyme (lactose intolerant),
Sucrose (table sugar) and Maltase Enzyme deficiency. You may want to get
a copy of this and take it to your doctor. It is the November/December
2000 issue. Email [log in to unmask] to see if they have any left. -Mike
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..The leader (Sandi) was a nutritionist at Nutrition Works in Seattle.
She explained the differences between allergies and intolerance's. Her
husband is Celiac. She also shared with us what different foods and/or
ingredients could do to you if you were allergic or intolerant. Why
don't you check out their website at nutritionworkseattle.com (if that
doesn't work just look up Nutrition Works, it SHOULD pop up. She was
very knowledgeable and maybe could be of some help to you. -Kim
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You may be getting some gluten unknowingly. [A distinct posibility.]
Canola oil has been problematic for me and then I found out that it is
usually contaminated from the process of rotating crops in the fields...
When I stopped with that, I pretty much returned to normal...I also carry
small containers of salad dressing and other condiments that are GF with
me to restaurants. It is too difficult to interrogate the wait staff.
-Cherlyn
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It took me two years to discover that I had a soy intolerance. I was
almost to the point of dying because of all the nutritional problems I
had. I did it by elimination, then going back on soy, and doing that
again and again until I pinned it down. Now I get very weak if I get
even the slightest exposure... I was tested by a RAST test for these
things, and they say I have no allergies. My body totally disagress.
The doctor says that food intolerance testing is not very accurate. Food
allergy tests more easily, but unless it is a serious one, still not too
accurate.-Carol [My boss is so allergic to nuts & other foods he has to
carry a bee sting kit with him every where he goes, yet his allergy tests
showed absolutely nothing and he's had every kind of test available on
the market today. Allergy testing for food is apparently a hit or miss
proposition.]
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Do the three men in your life need to avoid all starches, too? If not,
then at least they can continue to eat all that starchy stuff that's
causing you problems. If it drives you nuts, make THEM cook it. ;-) -
Pam [ Hmmm... I like that advise!]
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I'd have to say try it, with the encouragement that as your body heals,
you'll very likely be able to be able to tolerate starches again. GF/CF
is for life, but the other stuff seems to be periodic. When you're
feeling good, add back in the potatoes and rice first, then the refined
baked goods. You can cook a lot of meat and veggies, and put rice and
baked potatoes on the side for your men. They're not much extra work to
cook, so I at least, wouldn't have a problem adding them to the other
plates on the table (I'd just give myself the biggest steak, and an
extra helping of veggies :-)) Corn on the cob can also satisfy the
feeling of "that plate needs a starch". -meredith
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The sugar could cause your trouble! Try no processed sugar expect honey,
Honey! -Kevin
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Your experience sounds familiar--I had terrible gut aches, both upper
and lower, and even after I had been GF for several months, I still felt
like hell. I had all the of barium tests and gut scopes. I saw several
dieticians, and I finally got the message: when one is Celiac, and has
sustained intestinal damage over the course of years, it does indeed
take awhile to repair. For me. the key to repair was protein. I had
been a semi-vegetarian for many years, and apparently I was just not
getting enough protein to repair and maintain my gut. ...So I started
eating lots of fish, more chicken, egg whites (the fat in the yolks is
too much), soy products (these may be tough for you), and beef. I
worked hard at getting about 70 grams of protein per day. I dropped
dairy entirely, and this made a big difference. I eat a lot of well
cooked veggies, and have introduced salads back as I have been able to
tolerate the roughage. If you are enzyme deficient, and may celiacs
are, then you are not fully digesting the carbohydrates you are using.
This, of course, causes gas and gut disturbance. I had terrible painful
bloating, and eating the protein really helped calm things down. You
may want to try supplementing enzymes. This trail and error approach
took me about eighteen months to cycle through--and I am healthy and my
guts feel great now. -Chris
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There was a mention in the Seattle Times on Sunday that someone was
having a terrible time with "the green apple quickset" and I don't know
if this was one of your problems. Anyway, it was confirmed that eating a
couple of coconut macaroons greatly reduced the problem. The response was
that there is something in coconut that is helpful to the intestines. -
Jeremy
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It is difficult and I didn't get a lot better for at least twelve months
and feel it was around the 2 year mark I felt good. It seemed also with
me that as I omitted one food another one wuld upset me, so another one
was omitted. I have looked at both diets you are considering and felt no
I couldn't cope. so I gradually eliminated foods as I found they upset
me... Have you considered you may be getting hidden sources of gluten
check out this list http://www.celiac.com/safe_forbidden.html
www.anzfa.gov.au/Documents/Food_Additives_Shoppers_Guide
<http://www.anzfa.gov.au/Documents/Food_Additives_Shoppers_Guide>
-Christina
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Are you eating Tempeh? I cut it into portions size squares and fry it.
You can bake it too, but I have not. Everyone, including men, love it
fried in sesame oil with GF soy sauce. I add some water to the soy sauce
and let it soak into the tempeh the it while it cooks. Then saute
garlic, onion, peppers (red) and mushrooms and serve on top. If you fry
it in olive oil (garlic) and smother it w/ tomato sauce, it tastes a bit
like chicken parm. Hope this helps, check out Earl Mendell (sp?) Soy
Miracle cookbook.
Good stuff. -Nancy Mitchell
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Perhaps you have a candida like condition, I found I had to be on a
yeast free, carbo free except for vegetables for nine months. Try
finerhealth.com see entrolab and look at how yeast acts like gluten for
some people. You may have a lot of damage to your intestines which
takes time to heal I found when I got my test back from Dr. Fine I
stopped using brewers and bakers yeast and feel much better. Yeast feds
on sugar, and carbo's. - Marlene
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Bread also feeds yeast, If I was you I would only drink water and not eat
anything. ( Laughing right now ) I know it isn't funny but you got to
laugh or you will go crazy. Todd [Wise counsel!]
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Here's a good general resource url: http://www.candidapage.com/
The questionnaire is located at: http://www.howdyneighbor.com/jbayliss/
-Leif
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I went thru the same thing in my first year being gf but after staying
really clean for a year i now have very few problems with feeling crappy.
one of my favorites is pizza:
Corn tortilla shells the pre cooked flat ones put tomato paste on it
thin layer. season w/ Italian seasoning and garlic salt. for a dif use
olive oil for sauce cheese if not lactose probs. pepperoni i love
Hormel it says gf right on the lable put it in the broiler and watch
when it browns slightly its done i cut them in 4's and it makes a great
break from the mundane it helps with the gf blues we all get -mark s Connely
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