i see a dystonia specialist and this is something that
people with dystonia can do is to foll a body part to
relax. i do this on a regular basis that is to fool
one part to relax at least temporarily. you can't stay
tense in one place to relax another one all the time,
but, i do give the worse place a break for a short
time.
--- Jonathan Rand <[log in to unmask]> wrote:
> My feet r very tender, I think because of abnormal
> stresses put on them. It
> used 2 be much worse. When symptoms of chemical
> sensitivity first started
> creaping up on me, I didn’t no what was happening.
> My movements became more
> normal at first. Then I became very sleepy all the
> time. Sometimes my
> movements became A LOT worse! Neck spasms were
> choaking off blood 2 my
> brain, (or something like that). Anyway, my feet
> were getting soar from
> walking “wrong” I guess. 4 a few years, I wore
> extra large shoes, & I wore
> them on the wrong foot, (left on right, etc.), to
> stop my feet from rubbing
> on the shoes. Getting my toenails cut was like open
> heart surgery!
>
> But after I learned how 2 control the chemical
> sensitivity, my mobility
> problems seemed 2 “stabolize,” & walking became much
> easier. I still don’t
> / can’t walk without shoes because my toes curl up
> under my feet, & they wud
> drag along the ground, (and that HURTS), but since
> my doctors weren’t really
> helping, I felt I was forced 2 try stuff on my own,
> & maybe I was somewhat
> successful.
>
> I still hate getting my toenails cut but it’s a
> thousand times easier now…
>
> I don’t know if other people can do this… Maybe I’m
> weird. But at 1 point
> I found that I was able 2 relax my feet wile
> walking, if I tensed up
> “something else.” Like my legs, (or another part of
> my body). Then my toes
> didn’t curl up, & my feet didn’t turn in as much.
>
> But I have ATHETOSIS as well as spasticity. In som
> cases I get to CHOOSE
> between the 2.
>
> It’s a little complicated. But r u able 2 relax a
> part of your body 2 take
> the pressure off it? In order 2 do this, you hav2
> pay a price! Another
> part of u will have to tense up.
>
> It looks like som people with ONLY spasticity, won’t
> b able 2 do this. But
> I’m wondering if it can be learnt.
>
> I suspect there r many movement “schemes” people can
> adopt? I only no wats
> happening 2 me…. (& wat it LOOKS like I’m seeing in
> others). I cud be very
> off on this but I wanted 2 try 2 help, anyway. :)
>
> Jonathan
>
>
>
>
>
>
> >From: Rayna <[log in to unmask]>
> >Reply-To: "St. John's University Cerebral Palsy
> List"
> ><[log in to unmask]>
> >To: [log in to unmask]
> >Subject: My water-retention problem
> >Date: Tue, 22 Nov 2005 13:47:52 +0800
> >
> >Had my appointment with my GP on Thursday morning.
> She took one look at
> >my feet, prodded them a bit with her fingers, and
> got an expression of
> >`oh, this really isn't good', on her face. A bit
> unnerving, as my feet
> >weren't nearly as swollen as they have been in the
> evenings.
> >
> >She tested my BP - fine, took three vials of blood
> - sticking needles
> >into me is such a distressing situation for both of
> us (I have a
> >tendency to swear like a sailor in those
> situations, really cannot bear
> >invasive medical treatments, have had a few too
> many), that she figured
> >she may as well test for as much as possible while
> she was there. Went
> >over other possible reasons for the water
> retention, agreed that lack of
> >excercise hasn't helped, but will get better now
> the weather is good,
> >she doesn't think that my salt intake is a cause or
> a problem -
> >something about living in a warm climate, didn't
> pay much attention.
> >
> >So she gave me a script for diuretics, and wants to
> see me in a week.
> >The diuretics do seem to be working - my feet are
> less swollen than they
> >were in the evenings, but still too swollen, wish
> they would work faster.
> >
> >It seems that I have weird little toes, they both
> turn under my feet -
> >always have, and I thought that was normal,
> apparently not - and in the
> >last few weeks that has meant that I've essentially
> been walking on my
> >toenails. That explains the excruciating pain when
> I walk. May have to
> >go to a podiatrist - the thought makes me
> physically ill. I cannot bear
> >people fiddling with my feet - or even touching
> them. I've spoken to a
> >few others with CP in the last couple of years who
> also have this
> >difficulty. Does anyone else have problems with
> this, or have any ideas
> >as to the cause - physical or psychological?
> >
> >Rayna
> >
> >--
> >
> >Email: [log in to unmask]
> >http://www.livejournal.com/users/bookgirlwa/
> >
> >Yahoo Messenger: bookgirlwa
> >IM: bookgirlwa
> >ICQ: 205888629
>
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