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Subject:
From:
Susan Moskowitz <[log in to unmask]>
Reply To:
St. John's University Cerebral Palsy List
Date:
Sun, 12 Sep 2004 15:37:40 -0400
Content-Type:
text/plain
Parts/Attachments:
text/plain (180 lines)
Kathy Jo,
    I'm sorry that your parents and social worker are upset with you. You
have the right to explore your options. Unfortunately, a history of hurting
yourself and others SIGNIFICANTLY complicates your situation. I think there
are a number of issues which you need to consider.
    1. I know that you are in your 30's but do your parents retain any
degree of legal or medical guardianship over you?  If you have a history of
cognitive impairment or mental illness (such as repeated suicide attempts)
your parents may have requested ongoing guardianship despite your age. They
would have had to go to court to set this up. If they did then you ARE
subject to their decisions.You need to fend out. Guardianship arrangements
can be challenged, but there is no guarantee that you will win.
    2. What have you done to combat the negative feelings which have
prompted your efforts to hurt yourself or other people?  Have you been in
therapy and/or on antidepressant medication?   Unless you have done
something to help control
these impulses, it will be very difficult to arrange the assistance you will
need to live independently. REMEMBER THAT YOUR ASSISTANTS HAVE EVERY RIGHT
TO EXPECT TO BE PHYSICALLY SAFE WHILE WORKING WITH YOU!

3.  How have YOU handled situations when your assistants have stolen family
belongings, not showed up for work etc.? If you have left it up to your
parents to deal with these situations , then you have been reinforcing their
perception that you can't take care of yourself. You need to learn to take
charge of unpleasant situations if you want to convince other people that
you can handle difficulties and make your own decisions about significant
issues.
Susan
----- Original Message -----
From: "Kathy Pink" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Sunday, September 12, 2004 2:05 PM
Subject: Re: Your summer


> It isn't only my parents that say I can't live alone.  I have a history of
> hurting myself and others.  My county social worker says I need 24-Hour
> Care.  I met with The Independent Living Specialist , my social worker,
and
> my parents Thursday.  My parents and my social worker were mad with me
> because I contacted the Center Of Independent Living.  No two CP Cases are
> alike.  I can't afford 24-Hour Care.
>
>
>
> My parents are going to Branson in October and they said I can't stay here
> because it is their house.  People that worked here have stolen, some
people
> have forgotten , not showed, or they were three hours late.
>
>
> Kathy Jo
> Kathy Jo Pink
> [log in to unmask]
> AOL IM ScreenName:  kjptde
>
>
>
>
>
>
>
>
>
>
>
>
> -----Original Message-----
> From: St. John's University Cerebral Palsy List
> [mailto:[log in to unmask]]On Behalf Of Kathy
> Sent: Monday, September 06, 2004 8:14 PM
> To: [log in to unmask]
> Subject: Re: Your summer
>
>
> He's wrong.  There's assistive technology to help you with such things,
and
> if
> not that, aides can help you.  What will you do when your parents die?
You
> need to start planning ahead and getting ready to be on your own.
>
> Kat
>
> On Monday 06 September 2004 8:34 pm, Kathy Pink wrote:
> > My dad said in order to live independently you have to be able to talk,
> > walk, or feed yourself and I can't do any.
> >
> > Kathy Jo Pink
> > [log in to unmask]
> > AOL IM ScreenName:  kjptde
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> > -----Original Message-----
> > From: St. John's University Cerebral Palsy List
> > [mailto:[log in to unmask]]On Behalf Of Tamar Raine
> > Sent: Sunday, September 05, 2004 9:51 PM
> > To: [log in to unmask]
> > Subject: Re: Your summer
> >
> >
> > I can get in and out of my wheelchair, and I can feed myself, though I
> need
> > somebody to cut my food.  and I talk ok, not great, but i can
communicate.
> > But regardless, each of us is different, and please don't compare
yourself
> > to anybody.
> >
> > Tamar Mag Raine
> > [log in to unmask]
> >
> > The reasonable man adapts himself to the world; the unreasonable one
> > persists in trying to adapt the world to himself.
> > Therefore, all progress depends on the unreasonable man.
> > -George Bernard Shaw 1856-1950
> >
> > IM: tamarmag48
> > Oakland Mayor's Commission on People with disabilities
> >
> > > [Original Message]
> > > From: Kathy Pink <[log in to unmask]>
> > > To: <[log in to unmask]>
> > > Date: 9/5/2004 12:29:23 PM
> > > Subject: Re: Your summer
> > >
> > > Mag,
> > >
> > > Can you walk, talk, or feed yourself ? Kathy Jo
> > >
> > > Kathy Jo Pink
> > > [log in to unmask]
> > > AOL IM ScreenName:  kjptde
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > > -----Original Message-----
> > > From: St. John's University Cerebral Palsy List
> > > [mailto:[log in to unmask]]On Behalf Of Tamar Raine
> > > Sent: Friday, September 03, 2004 5:15 PM
> > > To: [log in to unmask]
> > > Subject: Re: Your summer
> > >
> > >
> > > Kathy Jo,
> > > You know I have an average of 5 hours of assistance a day. Others need
> >
> > more
> >
> > > assistance and yet they have their own apartments. So, you can do it,
> > > even if they say 24 hour care is too expensive, it is your right to
live
> > > where you want to live. The law is called Olmstead, and I know that
> > > States are having trouble helping everybody that needs it, but I urge
> you
> > > not to give up. it may take a year. but don't give up.  in the
meantime
> > > there are things you can do, like have somebody teach you about money.
> > >
> > > Mag

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