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Subject:
Re: Mary Falling to the side?‏
From:
"Cleveland, Kyle E." <[log in to unmask]>
Reply To:
Cerebral Palsy List <[log in to unmask]>
Date:
Fri, 15 May 2009 08:41:58 -0400
Content-Type:
text/plain
Parts/Attachments:
text/plain (46 lines) 
John,

I'm coming into this conversation late because of an email system failure and a bad restore (you can only use those backup tapes so many times...duh.).

Anyway, what does Mary think of the idea of a walker/chair (even if it's just a precautionary measure)?  If she's not needed one up to this point she might not like the idea too much.  All three of my kids dreaded anything that upped their "different" quotient at that age.  I can remember feeling the same (I'm the one with CP in the family: mild, R.H.).

My son, the youngest at 11, is constantly reminding his mom and me about how P.O.'d he is at us for making him have an IEP, having to have a couple classes a day with the school's Intervention Specialist and taking meds (he's been (correctly) dx'd with ADD).  Why is he mad?  Simply because HE has the impression that these steps make him appear different to his classmates.

Just a thought....

Kyle Cleveland


-----Original Message-----
From: Cerebral Palsy List [mailto:[log in to unmask]] On Behalf Of Kathleen Salkin
Sent: Thursday, May 14, 2009 7:56 PM
To: [log in to unmask]
Subject: Re: Mary Falling to the side?þ

Good, I'm glad you got her checked out!  It's best to rule out the big stuff
first.  (I was admittedly thinking of a stroke or a seizure but didn't want
to venture any opinions as I'm not a trained medical expert).  Now you can
focus on getting her the assistive technology she needs - it's great that
you have the doctor in your corner, because they can help push things
through.

As for the pediacure, is there a school nurse who can supervise the teachers
on such things and make sure Mary gets what she needs?  I know school nurses
have gone the way of the dodo bird, but it doesn't hurt to get someone in
the school to supervise such things.  You probably will need to really
advocate on this with the school.

Kat

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