On Saturday 05 April 2008 02:58:51 Mary Powers wrote:
> ps - walking makes me dizzy.? I also have flat feet.? but then I get dizzy
> a lot.? if anyone knows of an epilepsy specialist, or anything about CP and
> epilepsy (do they ever go together for anyone except me?) - I'd appreciate
> it.
Hi Mary,
I am a quadriplegic (sounds like something "The Who" released!!) and when I
was younger I used to have "petit mal" fits, the "special school" I boarded
at slapped me me onto phenobarbitol and it seemed to stop.
However, as I grew older (about 15) I realised I didn't want to take this
medication for life (stops you drinking alchohol for a start!!) so I
started "faking" taking the tablet (we used to queue at Matrons surgery after
breakfast to receive our medication, she'd pop it into our hands and we'd
throw it down our throats - except I'd learned to hold the pill in the crack
of my palm so it didn't actually go into my mouth). I'd take the pill back to
the dormitory and toss it in the back of my chest of drawers.
This went on for about 18 months but one day this cache was discovered by my
House Father, they discovered about 400 pills. I expected to get a right good
telling off, instead the staff were really nice to me but it seemed at least
one of them was always with me!!
The next day a new doctor turned up at the school and I was asked to go to
meet him. He was very nice, asking me if I was happy at the school? Did I get
on well with the staff? How many pills did I plan to collect? Was I going to
put the pills in something - like the breakfast tea urn that everyone drank
from?
It was during these questions that I realised he was not concerned about
whether I'd increased the risk of having an epileptic fit, but what, exactly,
I planned to do with my drugs cache when I got "enough"!! This was no medical
doc, he was a psychologist.
I hadn't realised that I had sufficient barbiturate in my stash to put the
whole school to sleep (possibly forever!!). Fortunately I convinced him that
my actions were simply to prove that I no longer needed the phenobarbitone,
not something darker, otherwise I may have been institutionalised for rather
longer than just my school years!!
So, after rather a long ramble, yes, CP & epilepsy are sometimes together, but
I haven't had a fit for over 40 years, and my dizziness these days is more
due to alchohol than epilepsy!!
Cheers
Deri
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