Welcome Back, Mary Katherine!  Kathy Jo Pink












On Fri, Apr 4, 2008 at 8:58 PM, Mary Powers <[log in to unmask]> wrote:

> hello,
>
> I was subscribed a while back, a couple of years ago, and I decided to
> rejoin.
>
> I was premature, 11 weeks early, and my dr. and I believe I have mild CP.?
> hemiplegia.? on my right hand side.
>
> I have a couple of questions:
>
> - I used to have a very bad speech impairment.? called "aphasia."? can
> anyone relate to this?? it affects BOTH thinking of words, and physically
> speaking them.? I had a related difficulty called "apraxia."
>
> with therapy, that's gotten a lot better.
>
> it used to be, I could hear people perfectly well but hardly speak.? now,
> after years of therapy, I can talk much better.? I'm in psychotherapy but
> she modified it to be more like speech therapy.? I didn't want to do them
> separately.
>
> - I find a LOT of people assume that b/c I can walk and type, I am OK, but
> there are many things I can't do.? I've thought about crutches or a
> wheelchair for quite some time now.? b/c my balance is really bad, and
> walking is difficult.
>
> which brings me to the last question.
>
> I have strabismus.? and when I was young, I used to have visual
> hallucinations.? but they were a weird kind.? Not like schizophrenia, but
> rather, solid objects.
>
> for example, I would think there was an end table, and put down a glass of
> juice, and the table would not be there.? the glass would fall.
>
> or
>
> I would think there was a chair and sit down and - there would be nothing
> there.
>
> sometimes, though, I hallucinated blank space.? like, I would not see a
> wall that was right in front of me.? so I'd walk right into it.? ouch :)
>
> my dr. believes
>
> I may have epilepsy that was not diagnosed.? b/c I do have a lot of
> confusion and headaches and etc. - things that are typical of mild
> seizures.? that can cause visual hallucinations.
>
> but also, there is a condition called Charles Bonnet syndrome where people
> whose eyes have trouble, or they have damage to the brain, hallucinate
> objects.? (instead of the typically religious hallucinations, or messages,
> from something like schizophrenia).
>
> I am wondering
>
> I was tested for stereo vision as an adult and they said I don't have it.?
> they said my brain processes visual information *separately* from each eye.?
> that's unusual, they told me.? usually with strabismus that isn't treated,
> the brain "turns off" input from one eye.
>
> when they tested me, they showed me four colors and I was wearing 3-D
> masks.? I could see the colors blinking in and out as I moved my eyes/head.?
> but never all four colors at once.
>
> those visual hallucinations I used to have, they were exactly like that.?
> objects appeared and disappeared.? I am wondering if I had them b/c my eyes
> were learning to work together.? also, I did have double vision at times.
>
> thanks!
>
>
> I'm a librarian, on leave from work atm (it's been a crazy couple of years
> and I need a break) - 39, married, 4 cats, no kids.
>
> take care,
>
> Mary Katherine
>
> ps - walking makes me dizzy.? I also have flat feet.? but then I get dizzy
> a lot.? if anyone knows of an epilepsy specialist, or anything about CP and
> epilepsy (do they ever go together for anyone except me?) - I'd appreciate
> it.
>
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