i am glad amber knows her limits. it took me 50 years
to learn that i had limits.
--- Trisha Cummings <[log in to unmask]> wrote:
> HI Manuela,
>
> My daughter is a right hemi. She has always been
> active but she knows her limits. I really laughed
> one time when one of her friends wanted her to do
> the impossible - she looked at her and said - Hello
> Cerebral Palsy Girl here. She is about to be 21 -
> she rides a bike to her classes, takes yoga and goes
> to the gym. In elementary school she would try most
> everything and was running the mile in 9 minutes and
> 30 seconds. That was pushing it and she ended up
> with pain and minute muscles tears - so she slowed
> down and alternated running and walking. It was
> better. She hasn't had OT or PT in years - frankly
> just out of my ability to pay for it. She has always
> been realistic about the CP - and any limitations it
> really imposes. But she will try hard to come with
> alternatives. The only sport she ever did was
> Softball back in elementary school. She did okay.
>
> Trisha
>
> ________________________________
>
> From: Cerebral Palsy List on behalf of Manuela
> Shepherd
> Sent: Sun 9/30/2007 11:51 AM
> To: [log in to unmask]
> Subject: Re: Hello again
>
>
>
> Thank you guys!
>
> Can someone tell me about physical activity in your
> life=3F. Is anybody perf=
> roming a sport=3F Are you all going to the OT or
> PT=3F Does it help=3F
>
> Manuela
>
>
> -----Urspr=FCngliche Nachricht-----
> Von: Cerebral Palsy List
> <[log in to unmask]>
> Gesendet: 30.09.07 04:08:37
> An: [log in to unmask]
> Betreff: Re: Hello again
>
>
> How much does your insurance covers for all the
> medication=3F You can give m=
> e a % if you want. Do you pay 100% out of your own
> pocket for the insuranc=
> e or does your job pays for it 100%=3F
> Manuela
>
>
>
> -----Urspr=FCngliche Nachricht-----
> Von: Cerebral Palsy List
> <[log in to unmask]>
> Gesendet: 30.09.07 03:49:32
> An: [log in to unmask]
> Betreff: Re: Hello again
>
>
> Yeah, Lyrica either works or it doesn't. At least
> that's what my doc said=
> . Luckily it works for both of us, eh=3F Still a
> bit pricey, though.
> =20
> The aneurysm wasn't too bad pain-wise. I was
> semi-comatose for five days,=
> so if it hurt I either didn't feel it or didn't
> care. The day I got out =
> of the hospital we drove 500 miles to Philly for my
> daughter's college gra=
> duation. THAT was an experience! LOL!
> =20
> Oh yeah, on the way back home we got in a car
> accident on a bridge exactly=
> over the center of the Ohio River. We were
> rear-ended by a guy from West=
> Virginia who was himself rear-ended by a guy from
> Pennsylvania. The Ohio=
> State Highway Patrol and the West Virginia State
> Police argued over whose=
> jurisdiction we were in (neither wanted to write up
> the accident on their=
> turf). Then we had to deal with the insurance
> companies and the insuranc=
> e laws from Ohio, WVa., and PA. We're still
> involved in that mess. At le=
> ast no one was seriously hurt--that's the important
> thing. Cars can alway=
> s be replaced--people can't.
> =20
> Kyle
>
>
>
=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F=5F
>
> From: Cerebral Palsy List on behalf of ehthiers
> Sent: Sat 9/29/2007 8:28 PM
> To: [log in to unmask]
> Subject: Re: Hello again
>
>
>
> I love my Lyrica and find it helps a lot better than
> cymbalta without the
> side effects, I don't have CP nor diabetic
> neuropathy (still trying to fin=
> d
> out the reason for my neuropathy). The aneurysm
> sounds extremely painful=
> .
>
>
>
> Beth t.
>
> > -----Original Message-----
> > From: Cerebral Palsy List
> [mailto:[log in to unmask]]
> > On Behalf Of Cleveland, Kyle E.
> > Sent: Friday, September 28, 2007 9:57 PM
> > To: [log in to unmask]
> > Subject: Re: Hello again
> >
> > OK, so how's everyone doing CP-wise=3F As for me,
> I've found
> > Botox. Anyo=3D ne else have any experience with
> this stuff=3F=20
> > It's been a godsend for=3D me. I get shot about
> every 3
> > months or so and a heck of a lot of stret=3D ching
> in between.=20
> > I guess we're going to start using some drug
> called=3D=20
> > "Myoblock" next time around. Apparently the body
> doesn't
> > develop the=3D same accomodation to the botulin
> toxin. I also
> > found a kick-butt ortho=3D tist in town that built
> an
> > incredible AFO for me--makes a night and day=3D
> difference in my gait.
> > =3D20
> > Last year I had an aneurysm pop somewhere in my
> gut and came
> > pretty clos=3D e to going 'casters up'. The net
> result was that
> > I lost about 30 pounds=3D in the hospital and
> have managed to
> > keep it off. That helps enormously=3D . Every
> pound you lose
> > is one pound less to carry on a battered old
> fra=3D me.
> > =3D20
> > I've also found a new med called Lyrica
> (pregabalin). The
> > stuff origina=3D lly was prescribed for folks with
> diabetic
> > nerve pain, but they are disc=3D overing it helps
> with a host
> > of CNS issues. My pain load has dropped=3D
> remarkably.=20
> > Lyrica and Zanaflex (tizanidine) at night are the
> only two=3D=20
> > CP meds I'm taking now. I'm doing better than I
> have been in years.
> > =3D20
> > Enough about me, what about everyone else=3F
> Bring me up to
> > date on every=3D thing.
> > =3D20
> > Kyle
>
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