yes, it made it to the list and i do not think it is
common for most of the cp people i know to be
suicidal. you should seek help.
--- Kathy Pink <[log in to unmask]> wrote:
> Did this make it to the list?
>
> On 10/1/07, Kathy Pink <[log in to unmask]> wrote:
> >
> > I have been very depressed and suicidal because I
> have CP. Is this
> > common?
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> >
> > On 9/30/07, Cleveland, Kyle E.
> <[log in to unmask]> wrote:
> > >
> > >
> > >
> > > Manuela-
> > >
> > >
> > >
> > > Like several other folks on the list (Kat, Ken,
> et al) CP hit me with a
> > > glancing blow. I'm a left hemi, but I wasn't
> impaired much growing up-no
> > > speech or cognitive issues and my spasticity was
> more of a cosmetic issue
> > > than a disability. In high school I ran cross
> country and let's just say I
> > > was not always last in the races.
> > >
> > >
> > >
> > > CP became an issue for me in my late 20s and
> early 30s-the over-use
> > > problem that Kat wrote about. The first
> indication that I was having
> > > problems was in 1992 when I was training as a
> cyclist for the Paralympics in
> > > Barcelona. I tore my achilles during a
> qualifying ride. During my
> > > recuperation I had an MRI that showed a lot of
> joint damage on the affected
> > > side-left hip, knee, shoulder.
> > >
> > >
> > >
> > > My mobility really declined from 1992 to 2000.
> The biggest problem was
> > > fibromyalgia. I was treated with opiates for
> the pain and did not have any
> > > other therapy.
> > >
> > >
> > >
> > > I live near Columbus, Ohio and I found a great
> doctor at the Ohio State
> > > University's Physical Medicine department. He
> got me off of the opiates and
> > > started me on a PT regimen that consisted mostly
> of warm water therapy and
> > > myofascial release.
> > >
> > >
> > >
> > > Today, I feel like I am back to the point I was
> twenty years ago. I
> > > wear an articulated AFO on my left leg, get
> Botox (300 units) in my left
> > > medial hamstring every three months and exercise
> daily with a strict
> > > routine-and I stretch, stretch, stretch. Each
> day I ride a stationary bike
> > > for 20 minutes, 100 rpm with minimal resistance
> and then do a cycle on the
> > > weight machine (work one muscle group to
> exhaustion and then immediately
> > > work the opposing muscles-minimal weight, high
> reps).
> > >
> > >
> > >
> > > I am very fortunate to be able to work with a PT
> who had worked with
> > > head-wound soldiers coming back from the current
> conflicts in Iraq and
> > > Afghanistan. He was able to flip from Active
> Army to the Guard and he's now
> > > working on long-term programs for these kids.
> Some TBI (Traumatic Brain
> > > Injury) patients have symptoms that mimic those
> of either athetoid or
> > > spastic CP. His big focus is on stretching.
> He's also taught my wife the
> > > myofascial release techniques which do wonders
> for my fibro pain and gait.
> > >
> > >
> > >
> > > I don't engage in any sport that would involve
> high impact to the major
> > > joints-no running, jumping, etc. My sports, if
> you want to call them that,
> > > are cycling, fly fishing and target shooting.
> > >
> > >
> > >
> > > You'll find in our CP sphere that adults are
> left with the short end of
> > > the stick. All of the research funding is spent
> on juvenile studies and
> > > little regard is given to those of use who are
> aging with CP. Ours is the
> > > first generation that lived to middle age and
> beyond with the condition, so
> > > we are, and probably will remain an enigma to
> the medical community.
> > >
> > >
> > >
> > > Kyle
> > >
> > >
> > > ________________________________
> > >
> > > From: Cerebral Palsy List on behalf of kat
> > > Sent: Sun 9/30/2007 4:57 PM
> > > To: [log in to unmask]
> > > Subject: Re: Hello again
> > >
> > >
> > >
> > > Hi, Manuela,
> > >
> > > I'm Kat and am one of the list mods - I have CP
> and work and live in
> > > North Carolina. I participated in sports when I
> was younger, like
> > > volleyball, football (soccer), racquetball and
> horseback riding as well
> > > as hiking and camping. Unfortunately no one
> warned me about the wear
> > > and tear on my joints so I didn't protect them
> as well as I should have
> > > and consequently got osteorthritis at an early
> age. This is not to say
> > > to keep from doing sports, etc, but to increase
> the stability of the
> > > joints by proper exercise and stretching.
> > >
> > > FYI,, I'm 54 so I grew up with physical
> therapists who were of the "more
> > > you use it the better" school - from the polio
> treatments. Polio
> > > victims went through the same sort of regime and
> now many of them now
> > > suffer from post-polio syndrome from the overuse
> of their muscles and
> > > joints.
> > >
> > > Kat
> > >
> > > Manuela Shepherd wrote:
> > >
> > > > Thank you guys!
> > > >
> > > > Can someone tell me about physical activity in
> your life?. Is anybody
> > > perfroming a sport? Are you all going to the OT
> or PT? Does it help?
> > > >
> > > > Manuela
> > > >
> > > >
> > > > -----Ursprüngliche Nachricht-----
> > > > Von: Cerebral Palsy List
> <[log in to unmask]>
> > > > Gesendet: 30.09.07 04:08:37
> > > > An: [log in to unmask]
> > > > Betreff: Re: Hello again
> > > >
> > > >
> > > > How much does your insurance covers for all
> the medication? You can
> > > give me a % if you want. Do you pay 100% out of
> your own pocket for the
> > > insurance or does your job pays for it 100%?
> > > > Manuela
> > > >
> > > >
> > > >
> > > > -----Ursprüngliche Nachricht-----
>
=== message truncated ===
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