Manuela,

I have never participated in any organized sports, but I have been  
doing water aerobics since I was 16 (now 34).  I also have done some  
yoga in the past, but don't have much time for it right now.  I have  
done PT over the years when I get tendonitis in my hips, but know the  
"routine" so well that I really don't need formal visits anymore.  I  
did go two years ago for a few visits while I was pregnant to do some  
gait training since I had to get used to walking with my growing  
belly.  Mostly, now I just stretch and do some exercises at home and  
go to the pool for water aerobics when I can.  I'm not doing near  
enough right now and am loosing flexibility and strength, but with a  
16 month old, going to grad. school full time and helping my husband  
with accounting for his business, I have little free time.

As a kid, I always liked when adaptive PE allowed me to do as much  
the same as the "regular" kids, but also loved getting to lift  
weights and do stretching in jr/sr. high in place of regular gym.   
That benefitted me alot and got me into an exercise routine that I  
can maintain throughout my life.

The PE teacher at the school where I taught is just phenomenal with  
ALL kids.  She gets the less athletic, overweight kids to feel as  
good about PE as the athletic ones and she has done some good stuff  
with the few disabled kids we've had too.  If I had had her as my gym  
teacher I may have actually learned how to play all the organized  
sports!

Linda
On Sep 30, 2007, at 11:51 AM, Manuela Shepherd wrote:

> Thank you guys!
>
> Can someone tell me about physical activity in your life?. Is  
> anybody perfroming a sport? Are you all going to the OT or PT? Does  
> it help?
>
> Manuela
>
>
> -----Ursprüngliche Nachricht-----
> Von: Cerebral Palsy List <[log in to unmask]>
> Gesendet: 30.09.07 04:08:37
> An: [log in to unmask]
> Betreff: Re: Hello again
>
>
> How much does your insurance covers for all the medication? You can  
> give me a % if you want. Do you pay 100% out of your own pocket for  
> the insurance or does your job pays for it 100%?
> Manuela
>
>
>
> -----Ursprüngliche Nachricht-----
> Von: Cerebral Palsy List <[log in to unmask]>
> Gesendet: 30.09.07 03:49:32
> An: [log in to unmask]
> Betreff: Re: Hello again
>
>
> Yeah, Lyrica either works or it doesn't.  At least that's what my  
> doc said.  Luckily it works for both of us, eh?  Still a bit  
> pricey, though.
>
> The aneurysm wasn't too bad pain-wise.  I was semi-comatose for  
> five days, so if it hurt I either didn't feel it or didn't care.   
> The day I got out of the hospital we drove 500 miles to Philly for  
> my daughter's college graduation.  THAT was an experience!  LOL!
>
> Oh yeah, on the way back home we got in a car accident on a bridge  
> exactly over the center of the Ohio River.  We were rear-ended by a  
> guy from West Virginia who was himself rear-ended by a guy from  
> Pennsylvania.  The Ohio State Highway Patrol and the West Virginia  
> State Police argued over whose jurisdiction we were in (neither  
> wanted to write up the accident on their turf).  Then we had to  
> deal with the insurance companies and the insurance laws from Ohio,  
> WVa., and PA.  We're still involved in that mess.  At least no one  
> was seriously hurt--that's the important thing.  Cars can always be  
> replaced--people can't.
>
> Kyle
>
>
> ________________________________
>
> From: Cerebral Palsy List on behalf of ehthiers
> Sent: Sat 9/29/2007 8:28 PM
> To: [log in to unmask]
> Subject: Re: Hello again
>
>
>
> I love my Lyrica and find it helps a lot better than cymbalta  
> without the
> side effects, I don't have CP nor diabetic neuropathy (still trying  
> to find
> out the reason for my neuropathy).   The aneurysm sounds extremely  
> painful.
>
>
>
> Beth t.
>
>> -----Original Message-----
>> From: Cerebral Palsy List [mailto:[log in to unmask]]
>> On Behalf Of Cleveland, Kyle E.
>> Sent: Friday, September 28, 2007 9:57 PM
>> To: [log in to unmask]
>> Subject: Re: Hello again
>>
>> OK, so how's everyone doing CP-wise?  As for me, I've found
>> Botox.  Anyo= ne else have any experience with this stuff?
>> It's been a godsend for=  me.  I get shot about every 3
>> months or so and a heck of a lot of stret= ching in between.
>> I guess we're going to start using some drug called=
>> "Myoblock" next time around.  Apparently the body doesn't
>> develop the=  same accomodation to the botulin toxin.  I also
>> found a kick-butt ortho= tist in town that built an
>> incredible AFO for me--makes a night and day=  difference in my gait.
>> =20
>> Last year I had an aneurysm pop somewhere in my gut and came
>> pretty clos= e to going 'casters up'. The net result was that
>> I lost about 30 pounds=  in the hospital and have managed to
>> keep it off.  That helps enormously= .  Every pound you lose
>> is one pound less to carry on a battered old fra= me.
>> =20
>> I've also found a new med called Lyrica (pregabalin).  The
>> stuff origina= lly was prescribed for folks with diabetic
>> nerve pain, but they are disc= overing it helps with a host
>> of CNS issues.  My pain load has dropped=  remarkably.
>> Lyrica and Zanaflex (tizanidine) at night are the only two=
>> CP meds I'm taking now.  I'm doing better than I have been in years.
>> =20
>> Enough about me, what about everyone else?  Bring me up to
>> date on every= thing.
>> =20
>> Kyle
>
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