I know, Chester, and if I was there now, I, too, would give her a bear
hug...
Jenn, I'm sorry if you think I'm cold, I'm not. I understand your
situation.
mike
-----Original Message-----
From: St. John's University Cerebral Palsy List
[mailto:[log in to unmask]] On Behalf Of Chester Worwa
Sent: Sunday, February 10, 2002 6:16 AM
To: [log in to unmask]
Subject: Re: My stupid docs-VENT
I think Jen just needs to get out, Mike. Being in bed
all of the time can really get to a person especially
a young person like Jen.
Jen,
Best of luck to you. If I was closer I would
come over and give you a great big hug.
Chester Worwa
--- Michael H Collis <[log in to unmask]> wrote:
> Jenn, is the Canadian college system set up to where
> one HAS to take
> courses at a particular time? I know you want to
> get done with studying
> as soon as possible, but I took a semester off from
> my college to have
> some medical work done, and picked up after I got
> back...
> mike
>
> -----Original Message-----
> From: St. John's University Cerebral Palsy List
> [mailto:[log in to unmask]] On Behalf Of
> Jennifer Zubko
> Sent: Saturday, February 09, 2002 4:55 PM
> To: [log in to unmask]
> Subject: My stupid docs-VENT
>
> Hi Everyone,
>
> First, my apologies to anyone who gets two of these
> because they bellong
> to more than one Internet support group, but I need
> to vent.
>
> I am still at home for medical testing. Yesterday,
> (February 8th), I
> went
> for an E.M.G. (The one which Dr. Strong
> (neurologist), had initially
> said
> he did NOT order). He really DID order the test. I
> get into the
> examination room, and the technician says that the
> requisition states
> that
> the physician ordered an EMG study of my right hand
> and arm. I WAS
> SHOCKED. THIS IS MY LEAST AFFECTED BODY PART. I snt
> the technologist to
> find Dr. Strong, and it turns out that he wants an
> EMG study of my
> legs--
> makes much more sense to me. The test was a needle
> study, so somewhat
> painful, but I got through it alright. No specific
> nerve damage
> anywhere,
> although there are some muscles in my legs which I
> will never be able to
> strengthen, because they have very little
> innervation...
>
> Now on to my second need for venting. I had
> telephoned Dr. Strong's
> office
> on Tuesday regarding oral medications I might take
> for dystonia. All of
> the movement keeps me awake at night, disturbs my
> sitting balance, etc.
> Yesterday, I ran into the nurse, and she said she
> would get him to
> prescribe me something, asked the phone number of
> our regular pharmacy,
> etc. I got a phone call from the nurse around 7 last
> night saying that
> Dr.
> Strong could not find the notes mentioning these
> meds, that his
> secretary
> still had to do a lot of filing, and that it might
> take a WEEK for them
> to
> call anything into the pharmacy. I am in pain and
> cannot wait a week!!!!
> So instead of freaking, I did the most humane thing
> and looked up
> medications for dystonia on the Internet and left a
> message for the
> nurse
> with the names that I thought were mentioned. I hope
> they will do
> something for me soon. I am sleeping 12-16 hours a
> day, just because I
> must take so much medication I HAVE NO LIFE. They
> will not tell me when
> they will do the surgery for Intrathecal Baclofen
> pump placement, just
> that I will be called a week to a month ahead, and
> that it will PROBABLY
> BE IN MAY I am going nuts, just want someone to
> listen to me, want to be
> a
> student instead of living in my bed. I want to cry
> as I write this.
> Sorry, but I needed to vent. Please say some prayers
> for me.
>
> Jenn
> (who wishes she could get new physicians but cannot
> thanks to the slow
> Canadian system).
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