<<Disclaimer: Verify this information before applying it to your situation.>> I have a question, and would like to address those in the medical profession or anyone that might have some good advice. I have avoided discussing my condition with my HMO doctor, because after going from doctor to doctor with adrenal problems that they could not discover from tests (Until I was finally given a 24 cortisol urine test) and never discovered or was even slightly interested in a overweight patient with no intestinal problems telling them she believed she had CD. Now my grandchildren are showing symptoms. Yesterday one of my grandchildren was taken to the doctor with spotty rashes which occurred after he ate a cookie at church. She had volunteerily taken him off gluten and soy because it was easier preparing meals, since she found out her younger child was reactingdeficition deficeit, rashes, illness that never stopped, asthma, slow language development etc.)and this reaction ceased with in two days when she she finally agreed to put him, at three, on a gluten and soy restricted diet. We didn't think the older boy had problems, until his teacher mentioned that he had been so much more attentive in class the last three weeks, (the same three weeks he had not had gluten) Then he started to react with a rash each time he had gluten in school. She asked to the doctor to test him. The doctor told her that he would only consider it if he showed signs of wasting and had extreme intestinal distress. She said that perhaps he should review some of the current data on CD, that new research shows that there may be other symptoms. He told her that the rash looked like neglect to him and that she should have been treating hsteroid the steriod cream he had given her a while back. She said she didn't want to keep treating him for symptoms, that she wanted to find the cause. As you can see his ego was effecting the situation. This is the typical reaction to asking even the best doctors to look into CD. I am officially undiagnosere cooperatingecooperating from adrenal problems. I do not want to take a challenge. I get too sick even with a slight slip. I have three daughters that see the same physician as I see who have unexplained illness including bone marrow tumors and thyroid cancer and a son who supposedly has Epstein Barr. They don't want to go through this hassle anymore with doctors (or go on a GF diet for that matter), but cannot ignore their children's problems. What do you say to a doctor when they tell you that "it is so rare a disease it is not sensible to even test for it," or "who is the doctor here?" or "I want to suggest a good therapist" even in the face of the above mentilife threateningethreatening disease. I have tried so many doctors, I just deal with it myself. I must go to a doctor soon for a check up. Is there any material that can be reviewed by a doctor that is not too long? What is the current ratio of CD patients to the general populace in Europe? In US? Where can I get that info in a research paper. What should we say? I am stumped and I wish I could have some medical authority back me up with literature, rather than challenging texpertiser's experise. I can understand that they don't know what's up when the gastrointestinal people don't even have it listed as an intestinal disorder, but what can we say without causing a communication problem? Carol in NJ