<<Disclaimer: Verify this information before applying it to your situation.>> I would like to confirm Russel's observations with regard to the UK Coeliac Society. Our department has for quite a few years been involved in basic biological research into the metabolic problems which may underlie the symptoms of autism. In particular, we have been studying the effects of gluten and casein free diets on the symptoms. In a proportion of cases there is undoubtedly a Coeliac type condition present and we have been able to refer subjects back to the physicians who have failed to identify this problem. The UK Coeliac Society has consistently refused to provide us with assistance or advice on dietary interventions/recipes or technical information. I do not have Coeliac Disease and that is the reason why information was refused me. One would have thought that a Research Department in a University which is trying to assist people with the disorder would be worthy of their support but apparently this is not the case. We have not bothered with them for several years now. In order to gain access to the cherished lists we had to find a person with an official "label" of CD who would then pass the information to us. It pains me to have to say this about an organisation which is supposed to be helping sufferers from a serious disorder but their attitude appears to me to be unique amongst such bodies. Most other organisations strive to publicise their work and so increase awareness and concern. I think most of us are aware that there are so many people with a "grumbling and undiagnosed" coeliac type condition. The quality of many lives would be greatly enhanced if there was an increased awareness of this situation. There may be very good reasons, apart from very old fashioned notions that only professionally qualified people should have knowledge, but I cannot see what they are. I would be willing to learn about the need for secrecy though. In the meantime, we will be continuing our studies whilst totally ignoring the body which purports to represent the interests of CD sufferers. Viva la Maelstrom Paul Shattock