<<Disclaimer: Verify this information before applying it to your situation.>> Aloha, I posted here about a month ago about my DH and got so much support and helpful information ... I really appreciate you all! I am still in limbo regarding my diagnosis -- the dermatologist gave me a skin biopsy (negative), but not the immunoflorescense one(!) -- he doesn't believe I have it, but doesn't give me any other diagnosis for my unusual constellation of pimply sores and interminable (horrific!) itching. I have asked to see another dermatologist -- but since I've been on the gluten-free diet for almost two months my sores are healing and I haven't seen any new ones developing (although I still ITCH like crazy!) Meanwhile, Hawai'i is really prooving to truly be the most isolated land mass in the world (in more ways than one). This is my home, but I'm feeling really dispirited in researching this condition. I've phoned every private and public medical referral service/organization, the university medical school, and have even talked with several dermatologists. So far I've heard of two other patients being treated for DH (dapsone only; the doctors seem to think the g-f diet isn't really possible -- or even necessary); the state nutritionist had one request for g-f information in the past six years. No one has heard of any celiac/DH/gluten-free support group here -- not even the CDF or CSA. I think my next step is to announce the formation of such a group! I've written a piece for a local paper and plan to notify as many medical information groups here as possible. Can anyone who has done this kind of organizing offer any suggestions? Would this be something that could be done with one of the national celiac/DH organizations? Any ideas are most welcome! Sus Shawhan \ Kulia i ka lokahi i ke ola. Honolulu, Hawai'i \ Strive for harmony in life.