<<Disclaimer: Verify this information before applying it to your situation.>> Hi All-- I didn't intend to take so long getting this summary posted. Thanks to everyone who responded and to those who have been so patient for the summary. I received approx. 20 replies to my request for info re: the connection (if any) between celiac disease and MS. I was seeing a new neurologist and didn't know what she would know about CD. (Turns out, she knows nothing about CD or the neurological symptoms associated with it - I will be giving her information at our followup appointment in Nov.) Most people brought up the issue of MS being considered an autoimmune disease, as is celiac, and the risk of developing a second autoimmune disease increases. Several people suggested trying a paleo diet and gave references to information that indicated MS or MS symptoms improved on this diet. A couple of related, but secondary issues came up the day I had my appt. with the neurologist. 1. My neurologist asked me if I have been tested for porphyria. Earlier in the day, I received the following info from a friend via e-mail: "Celiac disease has been found in conjunction with a large number of patients with variegate porphyria." SOURCE: Twaddle S, Wassif WS, Deacon AC, Peters TJ. Celiac disease in patients with variegate porphyria. Digest Dis Science journal 2001 Jul;46(7):pages 1506-8 2. Following my appt. with the neurologist, I had an appt. with a urologist who did a renal biopsy on me in 1985 for hematuria - just a recheck. He told me that he was getting published information that indicated kidney disease, manifesting as chronic hematuria, was being discovered in celiac patients - especially women. (He thought that in light of this information, I was most likely celiac at age 17) It took 34 years for the celiac diagnosis, which is still "unconfirmed." My neurologist did a lumbar puncture on the 18th. If it is negative for MS, she wants me to be tested for porphyria as this disease also causes many and varied neurological symptoms. The testing procedures for porphyria are complicated, however, so I will have to think long and hard on that one. If anyone would like to know about porphyria, the symptoms, the connection to celiac, etc., there is a group at: www.yahoogroups.com called "porph." (Without the quotes) You can also get a lot of information just doing a search for porphyria on the web. In other words, please don't use me as a resource person - I don't know enough to feel comfortable explaining porphyria to anyone else. Thanks, again, for your help. There doesn't seem to be much new medical information re: the relationship of MS, if any, to celiac. On the other hand, I was encouraged to find that my urologist was more enlightened about celiac, and also encouraged that it seems celiac is being considered in other diseases...we're evidently making some impact on the researchers/medical community. Cheers, Ayn/Kansas