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Dear Listmates,

 

I am posing this question mostly to healthcare providers.  I am a
Physician Assistant, who also has celiac disease, and I work for a GI
doctor in the Kansas City area.  In the past 8 months, we have diagnosed
about one new celiac a month.  NONE of these patients have had positive
TTG, which is supposed to be >90% accurate.  The last patient had
moderate villous blunting on her biopsies, and a TTG of 17. I always
order total IgA, so no, she was not IgA deficient. Her lab was done
through Quest Diagnostics.  My clinical experience is causing me to
question how many celiacs we could be missing by only ordering TTG as
the screening.  I tend to think that perhaps we should proceed with EGD
if the patient has abdominal pain, fatigue, lactose intolerance, other
autoimmune diseases, etc.  I'd appreciate feedback from others who
diagnose and treat celiacs.  I also wonder about this, because my 9 year
old daughter has celiac disease, diagnosed at age 6.  My youngest
daughter has had 2 negative TTGs, but I swear she has it!  That of
course is my mommy instinct taking over.  Thanks to all responders, I
will summarize.

 

Michelle


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