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Hi all,
Thanks AGAIN so much for all your wonderful help and support! Sorry
for the really late posting. This might be long, but I know many have
had questions about peripheral neuropathy and I hope that any of
these suggestions may be of some help.
----niacin------
About the fuzziness on the face, I've received e-mails from several
people that have had that unsettling experience and I've heard of two
suspected causes:
1) a niacin deficiency (also suggested by my doctor)
2)a temporary drop in blood calcium levels
Newly diagnosed celiacs tend to have vitamin deficiencies because
their intestines are still damaged and not absorbing properly.
There was a good post about niacin supplementation for neuropathy
that is very, VERY helpful. It really drives home the point that celiacs
might need to take a bit extra to meet their needs:
[log in to unmask]&L=celiac&P=R3527" target="_blank">http:[log in to unmask]&L=celiac&P=R3527
There is some really good information at the previous reference, and
also there is some info. on this page:
http://www.bookman.com.au/vitamins/niacin.html
about how much niacin is too much, etc.
---other B-vitamins----
Also, supplementing with the other B-vitamins, such as B-6 and B-12
might help. One person said that peripheral neuropathy was his first
symptom, and when he had his B-12 blood levels checked it was low
(pernicious anemia). I did find another post by someone who thought
that B-vitamins were important for his own improvement with various
mental and physical ailments:
[log in to unmask]&L=celiac&P=R512" target="_blank">http:[log in to unmask]&L=celiac&P=R512
-----Magnesium/calcium----------
Also, I learned that calcium/magnesium supplementation might help,
a 1:1 ratio was recommended and 1000 mg/day was said to be o.k,
and magnesium especially seemed to help with some people.
----food issues-----
I also received a suggestion that sugars and rice can aggravate one's
tingling. This person recommended reading "Breaking the Vicious
Cycle" and found that eliminating rice helped her symptoms.
--------for serious neuropathy-----------
Here's some other info. I've found that would be helpful for people with
more severe neuropathy:
The other night I was watching "Scientific American Frontiers" on PBS
and they had an interview with a scientist that is researching the use
of capsaicin, the natural compound that makes hot pepper "hot", in
alleviating nerve pain. They interviewed a man with debilitating
peripheral neuropathy in his legs and feet, so bad that he couldn't
even wear shoes. They numbed his feet with an anesthetic and
covered his feet in a paste of really strong capsicin compound, and
wrapped up his feet and let it sit for a few hours. The next few days he
said his feet hurt as bad as usual, but within a week he was not only
able to wear shoes but could go running again. I just found a web
page on the internet about this segment of the program.
http://www.pbs.org/saf/1105/segments/1105-4.htm
Click on "Wendye Robbins" and it will give you information about her
research. I read on her page that they are recruiting individuals for
experimental treatment, for anyone interested:
http://www.pbs.org/saf/1105/hotline/hrobbins.htm
I also read on another professional page that capsaicin cream therapy
may be considered an option for pain relief:
http://www.medscape.com/medscape/PhysicianAsst/AskExperts/2000/09/PA-ae17.html
So perhaps it's not that far out of a concept afterall.
----My own progress report-----
What I've been doing is taking a multivitamin in the morning, and a
capsule of calcium caps plus magnesium with each meal. I also take
50 mg Niacin at lunch. I received a very helpful e-mail that I should
look for inositol-bound niacin, but haven't managed to find it yet and
I'm taking a different one in the meantime. At dinner time I take a
B-complex supplement. All of this seems to be helping, as well as
cutting out corn for the time being.
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