Barbara

I agree about decorating it totally it has to be hers and I hope that decorating helps with acceptance of it.

Thanks,

John Runer

> Date: Fri, 15 May 2009 10:02:27 -0400
> From: [log in to unmask]
> Subject: Re: Mary a walker and Seizures
> To: [log in to unmask]
> 
> John,
> Maybe you're approaching this from the wrong angle.  Make the walker
> something that she participates in - decorates with stickers, keychains,
> those little things girls love.  She may surprise you and not really
> mind so much if it's something that she customizes.
> 
> -----Original Message-----
> From: Cerebral Palsy List [mailto:[log in to unmask]] On Behalf
> Of JOHN RUNER
> Sent: Friday, May 15, 2009 9:57 AM
> To: [log in to unmask]
> Subject: Mary a walker and Seizures
> 
> Mary a Walker and Seizures are all new issues for Mary and us.  They
> seem to all be pushing us towards homeschooling, especially with a
> resistant school system and no ability to relocate (sale our home and
> move) in this economy.   First the walker I have set up multiple
> appointments in June (I try to keep Mary's appointments together so she
> get them over and done with as they upset her so much).  I hope her
> specialists collectively can help us make an informed decision regarding
> the walker, seizures and homeschool in regards to those two issues.
> The seizure was the first we are aware of and now we are watching her
> very closely and have her attending the last nine days of school for
> half days only with the school told to call us immediately if she falls
> period and with them saying she will have an aid with her for each those
> half days. 
> 
> The walker will upset her yes any change does, if it is prescribed we
> will use it.  We will also ask about using a jogging stroller for long
> outings and if she is cleared by her cardiologist about starting
> physical therapy again.  As to the siezure unfortunatley the soonest
> anyone will do a sleep deprived EEG is june 23rd so I will be biting my
> nails and watching her until then.  I myself had epilepsy due to a head
> injury and and luckily outgrew gran-mal siezure at eleven with one
> relapse at age twenty four and nothing sense.  The siezure even though
> small has me terrified for her. The walker I look at like my birth
> defect it may be unpleasant due to how it singles me out and the walkers
> isingles Mary out but it has to be there.  Now if the walker is
> necessary 
> 
>  for Mary I pray that I can help her work though it and except that she
> is still my same wonderful little girl.  I know for Mary it will be very
> hard as a walker would be new change not something she had before but I
> pray I can help her through it with patience and compassion. 
> 
> 
> John Runer (dad to Mary Mild CP, RH, Cognitive Delays, and siezures)
>  
> 
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