Mary a Walker and Seizures are all new issues for Mary and us.  They seem to all be pushing us towards homeschooling, especially with a resistant school system and no ability to relocate (sale our home and move) in this economy.   First the walker I have set up multiple appointments in June (I try to keep Mary's appointments together so she get them over and done with as they upset her so much).  I hope her specialists collectively can help us make an informed decision regarding the walker, seizures and homeschool in regards to those two issues.    The seizure was the first we are aware of and now we are watching her very closely and have her attending the last nine days of school for half days only with the school told to call us immediately if she falls period and with them saying she will have an aid with her for each those half days. 

The walker will upset her yes any change does, if it is prescribed we will use it.  We will also ask about using a jogging stroller for long outings and if she is cleared by her cardiologist about starting physical therapy again.  As to the siezure unfortunatley the soonest anyone will do a sleep deprived EEG is june 23rd so I will be biting my nails and watching her until then.  I myself had epilepsy due to a head injury and and luckily outgrew gran-mal siezure at eleven with one relapse at age twenty four and nothing sense.  The siezure even though small has me terrified for her. The walker I look at like my birth defect it may be unpleasant due to how it singles me out and the walkers isingles Mary out but it has to be there.  Now if the walker is necessary 

 for Mary I pray that I can help her work though it and except that she is still my same wonderful little girl.  I know for Mary it will be very hard as a walker would be new change not something she had before but I pray I can help her through it with patience and compassion. 


John Runer (dad to Mary Mild CP, RH, Cognitive Delays, and siezures)
 

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