<<Disclaimer: Verify this information before applying it to your situation.>>

The recently convened Cancer Policy Board is hosting a public forum at the
National Academy of Sciences Building in Washington D.C. on March 31st.
To listen to views of individuals and organizations who has concerns about
the nations efforts to combat cancer. To generate ideas for topics the
Board might address. To assess priorities etc.

Some areas of possible interest include practice guidelines , diagnostic
screening, mechanisms for consumers to influence policy, clinical trials
etc. The are interested in topics which might involve multiple agencies
and public and private concerns.

As lack of timely diagnosis of celiac disease increses the risk of
lymphoma and as a nuber of researchers including Dr. Murray and Dr.
Fasano have indicated that there is considerable under diagnosis of
celiac disease in America it would seem responsible to communicate
concerns about the need ( my ideas only, use yours or both)

 To disseminate information to the American medical
community to aid in early diagnosis.

To increase funding for research on the actual incidence in the
American population and the incidence of complications and lymphoma.

To change regulations of the FDA to  make it easier for diagnosed
celiacs to maintain a gluten free diet.

To fund research  for treatment of those who have complications of celilac
disease leading to lymphoma

If you are interested in providing input  in person
or want to attend ( If you live near) Try to let them know as soon as
possible

Contact 202-334-1382
Fax 202-334-1317
EMAIL-   [log in to unmask]

You can send written testimony or letters to
 National Cancer Policy Board(FO3013)
2101 Constitution Avenue
Washinton, DC 20418

EMAIL [log in to unmask]

Via Norld Wide Web
http://www2.nas.edu/cancerbd/

They will be having a listserv
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subscribe CANCER-POLICY

I know that hopefully this may seem somewhat remote to many of you but
we do want to limit the illness and risk of the people who are not getting
diagnosed.

Irma in MA