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Aloha all,
 
I was an active reader (and sometimes poster) on the celiac list about
a year ago when I was going through the worst of my DH.  At that time I
was seeking any others here in the islands who might want to form a
support group. All my phone inquiries then were pretty disheartening,
and so before I begin anew, I'd like to put out the request here again.
 
My attention has been on caring for myself this past year, and I have
stabilized now; I am resolutely gf and have hardly any itching or
internal symptoms. I didn't ever get a medical diagnosis or much
medical help (they tested, probed and poked -- ignoring my input -- and
ruled out any other possible dermatological or allergic condition,
while I just continued my gf diet and suffered.)  There seems to be
little understanding of Celiac/DH here!
 
I am so grateful for having found this list!
 
I am considering seeking medical advice now and so am even more
motivated to find a medical doctor who would be open to testing and
treating me. (Aaargh... has anyone done a challenge diet?!) I am
espicially seeking one who doesn't see dapsone as the 'cure all' for
the condition.  One dermatologist I contacted here last year stated
that his patient had been on it for over a year and didn't need to
follow the gf diet!!
 
If anyone has any information, I would be most grateful!!
 
Mahalo nui!
 
Sus Shawhan
[log in to unmask]    /    Kulia i ka lokahi i ke ola.
Honolulu       /           Strive for harmony in life.